Childhood Cancer: A Guide for Families, Friends an A Parent's Guide to Solid Tumor Cancers

By Honna Janes-Hodder, Nancy Keene
August 1999
Pages: 533
ISBN 10: 1-56592-531-9 | ISBN 13: 9781565925311
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Description

Childhood Cancer: A Parent's Guide to Solid Tumor Cancers features a wealth of resources for parents of children with solid tumor cancers, plus many stories of "veteran" parents. Parents will encounter medical facts simply explained, practical advice to ease their daily lives, and tools to be strong advocates for their child. Includes a passport to record patient's medical history.
Full Description

Childhood Cancer, the most complete parent guide available, features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will encounter medical facts simply explained, advice to ease their daily lives, and tools to be strong advocates for their child.

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Childhood Cancer Review,  November 05 1999
Submitted by Cheryl, Michael and Shoshana Tobias   [Respond | View]



We are eternally grateful for the invaluable information and advice found in this book! For us, a source of personal knowledge of osteosarcoma is very limited to the general public. As parents, a patient and participants in this project, it is truly a gift of guidance, hope and comfort. Not only would I reccommend it for any one in need, but it definitely should hold a proud place on the book shelf of every pediatric facility.


Childhood Cancer Review,  September 11 1998
Submitted by Lynne Rief   [Respond | View]



It was long over-due for a book about general childhood cancers to be written. I really wish this book had been available in 1993 when my daughter was first dx'd with cancer. As it is, I am honored and priviledged to be included among the credits of this book, as a small contributor. And even more, to have my daughter's picture included in the memorial pages. I know that other families who have the need to make use of this book, will find it informative and enlightening. And I sincerely hope that someday, this book will be rendered obsolete, because there will be no more childhood cancer.

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Media reviews In my 15 years of experience as a pediatric oncology nurse, I have never
come across a book as informative, easy-to-read, honest, and encouraging as
Childhood Cancer. Janes-Hodder and Keene, both mothers of children who have
had cancer, have written a book that is immensely valuable for parents of
all newly diagnosed children with cancer. ... Childhood Cancer is a book
that parents will refer to again and again over the course of their child's
illness. It will truly empower those who read it to be better advocates for
their children. I am recommending this book to all the pediatric oncology
nurses, social workers, and family support personnel I know.
--Kari Yarwood, ND, RN, CPON
Pediatrics Special Interest Group Newsletter, Oncology Nursing Society

"An excellent, supportive, and well-needed book." --Alan Rees, Alan Rees on Consumer Health, A Majors Report

"We are eagerly awaiting the release of Childhood Cancer: [A Parent's Guide to Solid Tumor Cancers] by Nancy Keene and Honna Janes-Hodder. Parents of children with solid tumors need an authoritative, comprehensive and accurate reference to guide them as they help their sons and daughters fight cancer. Keene's Childhood Leukemia is already a standard reference for parents of children with leukemia, and the new volume will become just as indispensable to parents of children with other cancers. At Seattle Candlelighters, we're working to make this book available to newly diagnosed families throughout Western Washington. It's crucial that parents have access to sources of complete information as they and their children enter the often terrifying world of pediatric oncology." --Kathleen Barry J.D., Executive Vice President of Seattle Candlelighters Childhood Cancer Foundation (SCCCF)

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