The following excerpt is taken from Appendix A of
Autistic Spectrum Disorders: Finding a Diagnosis and Getting
Help by Mitzi Waltz, copyright 2002 by O'Reilly &
Associates, Inc. For book orders/information, call
1-800-998-9938. Permission is granted to print and distribute this
excerpt for noncommercial use as long as the above source is
included. The information in this article is meant to educate and
should not be used as an alternative for professional medical care.
The books, pamphlets, and other resources listed
here can help you further explore areas of interest related to
autistic spectrum disorders. We have included addresses for
printed materials that are not usually available in stores or
libraries; otherwise, you should be able to find these items in your
local library or via interlibrary loan, or be able to purchase them in
regular or online bookstores.
These books and publications are guides to aspects of autistic
Asperger's Syndrome: A Guide for Parents and Professionals. London: Jessica Kingsley Publishers, 1998.
Autism Research Institute.
Autism Research Review International (ARRI). This informative newsletter summarizes medical study
results, and includes reports on traditional and alternative
medicine for autistic symptoms. Available from ARI at 4182 Adams
Avenue, San Diego, CA 92116.
Baron-Cohen, Simon, MD, and Bolton, Patrick, MD.
Autism: The Facts. Oxford, UK: Oxford University Press, 1995.
Bashe, Patty R., and Kirby, Barb.
The OASIS Guide to Asperger Syndrome. New York: Crown Publishing, 2001.
Targeting Autism: What We Know, Don't Know, and Can Do to Help Young Children with Autism and Related Disorders. Berkeley, CA: University of California Press, 1998.
Autism Treatment Guide. Eugene, OR: Four Leaf
Press, 1996. This book by a parent offers practical suggestions
for addressing difficult symptoms and behaviors.
A Slant of Sun: One Child's Courage. New York: Norton, 1998.
This is a mother's memoir of raising a son with PDD-NOS.
Kozloff, Martin A.
Reaching the Autistic Child: A Parent Training Program. Cambridge, MA: Brookline Books, 1998.
Leicestershire County Council and Fosse Health Trust.
Autism: How to Help Your Young Child. London: National Autistic Society, 1995. This is an excellent introductory booklet for UK parents
with a newly diagnosed child.
Schopler, Eric, and Gary B. Mesibov, editors.
High-Functioning Individuals with Autism (Current Issues in Autism). New York:
Plenum Publishing, 1992.
Sperry, Virginia Walker, and Sally Provence.
Fragile Success: Nine Autistic Children, Childhood to Adulthood. 2nd edition.
Baltimore, MD: Paul H. Brookes Publishing, 2000. This book offers
fascinating profiles written over a period of years, including
one follow-up report by a young man with autistic tendencies who
is also profiled as a child.
Tantam, Digby. A Mind of One's Own: A Guide to the Special
Difficulties and Needs of the More Able Person with Autism or
Asperger's Syndrome. London: National Autism Society, 1991.
Wing, Lorna. Autistic Spectrum Disorders: A Guide to Diagnosis.
London: National Autistic Society, 1993. This diagnostic guide is
also available on tape.
Jessica Kingsley Publishers, a specialty publishing company, has
published more books by people with ASDs. Its catalog is online
Gerland, Gunilla. A Real Person: Life on the Outside. London:
Souvenir Press, 1997.
Grandin, Temple. Thinking in Pictures, and Other Reports from My
Life with Autism. New York: Vintage Books, 1996.
Grandin, Temple, and Margaret M. Scariano. Emergence: Labeled
Autistic. New York: Warner Books, 1996.
Williams, Donna. Nobody, Nowhere: The Extraordinary Autobiography
of an Autistic. New York: Avon Books, 1994.
Choose among these books for a gentle introduction to autistic
spectrum disorders for siblings, young relatives, and classmates.
Another good choice for helping young children understand the
maddeningly literal thinking patterns common in individuals on
the spectrum is the Amelia Bedelia book series by Peggy Parish.
Amenta, Charles A., III. Russell Is Extra Special: A Book About
Autism. Washington, DC: Magination Press, 1992.
Gartenberg, Zachary M. Mori's Story: A Book About a Boy with
Autism. Minneapolis: Lerner Publications, 1998. Writeen by a
grade-school student about his brother-and very good.
Gerland, Gunilla. Finding Out About Asperger Syndrome, High
Functioning Autism and PDD. London: Jessica Kingsley Publishers,
2000. Gerland's book is aimed at children who want to know more
about their own diagnosis.
Gold, Phyllis-Terri. Please Don't Say Hello. New York: Human
Sciences Press, 1986.
Gottlieb, Eli. The Boy Who Went Away. New York: St. Martin's
Katz, Illana, and Dr. Edward Ritvo. Joey and Sam: A Heartwarming
Storybook About Autism, a Family, and a Brother's Love. Los
Angeles: Real Life Story Books, 1993.
Lears, Laurie. Ian's Walk: A Story About Autism. Morton, IL:
Albert Whitman & Company, 1998.
Saguisag, Lara. There's a Duwende in My Brother's Soup. Manila:
Lampara Books, 2001. This bilingual book in Filipino and English
has super illustrations. It's a funny, sweet story about a
sister's view of her brother's autism, and her attempt to
understand his world.
Thompson, Mary. Andy and His Yellow Frisbee. Rockville, MD:
Woodbine House, 1996.
Watson, Esther. Talking to Angels. New York: Harcourt Brace,
Werlin, Nancy. Are You Alone on Purpose? New York: Houghton
Much information is also available on the web sites of autism
organizations listed in Appendix B, Support and Advocacy, and
research and treatment centers, listed in Appendix C, Research
and Testing Facilities.
Compiled by the manager of the St. John's Autism list, this
includes a comprehensive book list, advice, and much more.
Autism Research Institute
See the ARI Publications List for a wide variety of ARI
pamphlets, papers, books, and videotapes on subjects related to
autistic spectrum disorders.
The Maze: Jypsy's Autism Links
Quite possibly the largest collection of addresses for
autism-related web sites around the world, and served up with a
healthy helping of humor.
Online Asperger's Syndrome Information and Support
O.A.S.I.S. is Information Central for issues related to
"A Tiger by the Tail"
This is a mother's story of raising an autistic child in the bad
555 Kinderkamack Road
Oradell, NJ 07649-1517
Fax (201) 634-6599
This magazine for parents of children with disabilities is an
invaluable resource. Most issues are constructed around a theme,
such as transition planning, mobility, or special education. The
parent-to-parent letters section is especially useful for
families trying to identify or find others with a rare
Massachusetts General Hospital Neurology Forums
This web site features discussion groups (live and bulletin
board-style) on almost every known neurological disorder.
American Association on Mental Retardation Publications Center.
Health Care Financing for Severe Developmental Disabilities.
Monograph. 444 N. Capitol Street NW, Suite 846, Washington, DC
20001-1512, (202) 287-1968 or (800) 424-3688, fax (202) 387-2193,
Beckett, Julie. Health Care Financing: A Guide for Families. Iowa
City: National Maternal and Child Health Resource Center. This
overview of the health care financing system includes advocacy
strategies for families and information about public health
insurance in the US. University of Iowa, Iowa City, IA 52242,
The Disability Bookshop. How to Get Quality Care for a Child with
Special Health Needs: A Guide to Health Services and How to Pay
for Them. P.O. Box 129, Vancouver, WA 98666-0129, (206) 694-2462
or (800) 637-2256.
Larson, Georgianna, and Judith Kahn. Special Needs/Special
Solutions: How to Get Quality Care for a Child with Special
Health Needs. St. Paul, MN: Life Line Press, 2500 University
Avenue, St. Paul, MN 55141.
McManue, Margaret. Understanding Your Health Insurance Options: A
Guide for Families Who Have Children with Special Needs.
Bethesda, MD: ACCH. This guide covers health care financing,
insurance coverage, and long-term planning. 7910 Woodmont Avenue,
Suite 300, Bethesda, MD 20814, (301) 654-6549.
Neville, Kathy. Strategic Insurance Negotiation: An Introduction
to Basic Skills for Families and Community Mental Health Workers.
Boston: Federation for Children with Special Needs. Single copies
of this pamphlet are available at no cost, and it is very helpful
if your insurance company insists on forcing you to use the
mental health system rather than your regular medical benefits
for care. CAPP/NPRC Project, 95 Berkeley Street, Suite 104,
Boston, MA 02116.
Oreck, Stephen. How to Get the Most Money Out of Your Health
Insurance(pamphlet). Medic Publishing, P.O. Box 89, Redmond, WA
98073, (206) 881-2883.
Peterson, Robert, and David Tenenbaum. Fighting Back: Health
Insurance Denials. Madison, WI: Center for Public Representation.
This book can help you get better coverage and combat claims
denials. 121 S. Pinckney Street, Madison, WI 53703, (800)
Association of Maternal and Child Health Programs
1220 19th Street NW, Suite 801
Washington, DC 20036
Fax (202) 775-0061
Contact AMCHP to locate your state's Children with Special Health
Care Needs Program.
National Association of Insurance Commissioners
2301 McGee Street, Suite 800
Kansas City, MO 64108-2604
Contact NAIC to locate your state insurance commissioner, who can
tell you about health insurance regulations in your state
The Sibling Support Project
Children's Hospital and Medical Center
P.O. Box 5371, CL-09
Seattle, WA 98105
Fax (206) 527-5705
Contact: Donald Meyer, firstname.lastname@example.org
This group offers information about the Sibshops support group
project and the online support lists SibKids and SibNet.
Gray, David E. Autism and the Family: Problems, Prospects, and
Coping with the Disorder. Springfield, IL: Charles C Thomas
Greenspan, Dr. Stanley I., with Jacqueline Salmon. The
Challenging Child.. Reading, MA: Addison-Wesley, 1995. This book
introduces Dr. Greenspan's concepts about tailoring interventions
to each specific child.
Greenspan, Dr. Stanley I., and Serena Wieder, with Robin Simons.
The Child with Special Needs. Reading, MA: Addison-Wesley, 1998.
Highly recommended for all parents and professionals working with
people who have ASDs. Greenspan explains floor-time play therapy,
and discusses how to match it to your child's personality,
physical needs, and diagnosis.
Kurcinka, Mary Sheedy. Raising Your Spirited Child. Reprint
edition. New York: Harper Perennial Library, 1992. Written for
parents of nondisabled but "difficult" children, this is
nevertheless an excellent parenting guide to have on hand. It
covers sensory issues, feeding problems, and more. An
accompanying parent workbook is also available.
Meyer, Donald, and Patricia Vadasy. Living with a Brother or
Sister with Special Needs. Seattle: University of Washington
Meyer, Donald, editor. Views from Our Shoes: Growing up with a
Brother or Sister with Special Needs. Rockville, MD: Woodbine
Meyer, Donald, editor. Uncommon Fathers: Reflections on Raising a
Child with a Disability. Rockville, MD: Woodbine House, 1995.
Naseef, Robert A. Special Children, Challenged Parents: The
Struggles and Rewards of Raising a Child with a Disability. New
York: Birch Lane Press, 1997.
Schopler, Eric, editor. Parent Survival Manual: A Guide to Crisis
Resolution in Autism and Related Developmental Disorders. New
York: Plenum Publishing, 1995. Based on the TEACCH model, this
book provides concrete suggestions for dealing with specific
problems and general issues.
Stehli, Annabel, editor.Dancing in the Rain: Stories of
Exceptional Progress by Parents of Children with Special Needs.
Westport, CT: Georgiana Organization, 1995.
For information about local school programs, consult both parent
groups and advocacy organizations in advance. They can usually
tell you about specific schools or programs that have been
successful in the past-and warn you away from those that may be
detrimental to your child. National autism and disability
advocacy groups can also help. The following are general special
education resources, including information for parents and about
pedagogical techniques. For more, see "Specific therapeutic
interventions," later in this Appendix.
Anderson, Winifred, Stephen Chitwood, and Dierdre Hayden.
Negotiating the Special Education Maze: A Guide for Parents and
Teachers. 3rd edition. Rockville, MD: Woodbine House, 1997.
Well-written and very complete, this is a good "starter kit" for
Dornbush, Marilyn P., and Sheryl K. Pruitt. Teaching the Tiger: A
Handbook for Individuals Involved in the Education of Students
with Attention Deficit Disorders, Tourette Syndrome, or Obsessive
Compulsive Disorder. Duarte, CA: Hope Press, 1995. This is a
wonderful book, full of practical suggestions, organizing aids,
and ideas for teachers, parents, and students. Despite the title,
it's very applicable to children with ASDs.
Fouse, Beth. Creating a Win-Win IEP for Students with Autism.
Arlington, TX: Future Horizons, 1996.
Fullerton, Ann, editor.Higher Functioning Adolescents and Young
Adults with Autism: A Teacher's Guide. Austin, TX: ProEd, 1996.
Koegel, Robert L., and Lynn Kern Koegel, editors. Teaching
Children with Autism: Strategies for Initiating Positive
Interactions and Improving Learning Opportunities. Baltimore:
Paul H. Brookes Publishing, 1996.
National Autistic Society. Schools, Units, and Classes. London:
NAS, 1998. This list of specialist schools and units
(self-contained classrooms) in the UK for children with autism
also includes addresses of county education councils.
Peeters, Theo. Autism: From Theoretical Understanding to
Educational Intervention. Lewisville, TX: J.A. Majors Company,
1997. This book explains the techniques used in TEACCH programs.
Powell, Stuart, and Peggy Ahrenhold Gallagher. Autism and
Learning: A Guide to Good Practice. London: David Fulton
Quill, Kathleen Ann, editor. Teaching Children with Autism:
Strategies to Enhance Communication and Socialization. Albany,
NY: Delmar Publications, 1995.
Simpson, Richard L., and Brenda Myles, editors. Educating
Children and Youth with Autism: Strategies for Effective
Practice. Austin, TX: ProEd, 1998.
Wright, Peter W. D., and Wright, Pamela. Wrightslaw: Special
Education Law. Hartfield, VA: Harbor House Law Press, 1999.
Wright, Peter W. D., and Wright, Pamela.Wrightslaw: From
Emotions to Advocacy: The Special Education Survival Guide.
Hartfield, VA: Harbor House Law Press, 2001. Both "Wrightslaw"
titles are packed with essential information on special education
law, advocacy tactics, and IEP tips.
Families for Early Autism Treatment (FEAT)
This web site contains much information about ABA, and also has a
copy of the excellent and very comprehensive California Education
Department report "Best Practices for Designing and Delivering
Effective Programs for Individuals with Autistic Spectrum
HEATH: The National Clearinghouse on Postsecondary Education for
Individuals with Disabilities
This web site focuses on college opportunities for people with
physical or learning disabilities.
Special Education and Disabilities Resources
This web site features information and links on US special
education law, assistive technology, and related topics.
These are just some of the companies that sell child safety
Child Safety Store
1085 SW 15th Avenue, E-3
Delray Beach, FL 33444
Fax (561) 272-8289
The Safety Store
P.O. Box 7227
Charlottesville, VA 22906-7227
(434) 973-8030 or (888) 723-3897
These companies (and many others) carry clothing designed for
people who have difficulty with fasteners, mobility problems,
special toileting needs, and so on.
A few of the catalogs listed include shoes, which tend to be a
special problem. Slip-ons or styles with Velcro closures may be
available locally; alternatively, there are a variety of items
that can replace regular laces, including lace-in Velcro closures
and curly elastic laces that bounce shut.
Adrian's Adaptive Closet
29571 Monarch Drive
San Juan Capistrano, CA 92675
Fax (714) 364-4380
P.O. Box 213
Tupelo, MS 38802
Personal Touch Health Care Apparel Inc.
P.O. Box S
Brooklyn, NY 11223
(718) 375-1703 or (888) 626-1703
Fax (718) 627-0200
This company has adult clothing only, including styles with easy
(61) 3 9781 2533
Fax (61) 3 9781 2544
This firm offers very hip Australian designs for people with
Special Clothes Inc.
P.O. Box 333
Harwich, MA 02645
Here are some resources related to interventions discussed in
this book. Web sites listed earlier may also contain useful links
to online information.
Diet, vitamins, and allergy-related interventions
The Autism Research Institute's web site
and publications list
have a wealth of information on these topics, as does Allergy
Induced Autism in the UK
There are more resources for people on casein-free and gluten-free
diets in books written for people with celiac disease.
Callahan, Mary. Fighting for Tony. New York: Simon & Schuster,
1987. A mother's story of "recovering" her autistic son, whose
behavior improved dramatically with dietary changes.
Crook, William G., MD. The Yeast Connection Handbook. Jackson,
TN: Professional Books, 1997.
Jackson, Luke. A User Guide to the GF/CF Diet for Autism,
Asperger Syndrome and ADHD. London: Jessica Kingsley Publishers,
2001. Featuring kid-tested GF/CF recipes and written by a highly
articulate teen with AS, this is easily the most engaging and
user-friendly intro to dietary interventions.
LeBreton, Marilyn. Diet Intervention and Autism: Implementing the
Gluten Free Casein Free Diet for Autistic Children: A Practical
Guide for Parents. London: Jessica Kingsley Publishers, 2001.
Lewis, Lisa. Special Diets for Special Kids: Implementing a Diet
to Improve the Lives of Children with Autism and Related
Disorders. Arlington, TX: Future Horizons, 1998. Written by the
mother of a son diagnosed with PDD-NOS who was helped greatly by
Meyer, Elisa. Feeding Your Allergic Child: Happy Food for Happy
Kids: 75 Proven Recipes Free of Wheat, Dairy, Corn, and Eggs. New
York: St. Martin's Press, 1997.
Rapp, Doris. Is This Your Child? Discovering and Treating
Unrecognized Allergies in Children and Adults. New York: William
Morrow and Company, 1992.
Shattock, Paul, and Savery, Dawn. Autism as a Metabolic Disorder.
2nd edition. Booklet. Available for #3 sterling from Autism
Research Unit, School of Health Sciences, University of
Sunderland, Sunderland SR2 7EE, UK.
Shaw, William, and others. Biological Treatments for Autism and
PDD: What's Going On? What Can You Do About It? Toronto:
Sunflower Publications, 1998. An in-depth introduction to
biological interventions, including diet and vitamins.
Autism Network for Dietary Intervention (ANDI)
Founded by Lisa Lewis and friends, this is an advocacy and
information site for diet and vitamins as treatments for ASDs.
No Milk Page
NO-MILK mailing list
This is an open, unmoderated discussion list for those following
a milk/casein/lactose- free diet. To subscribe, send email with
the subject line as "SUB NO-MILK YourFirstName YourLastName".
Applied behavior analysis
These books and online resources cover aspects of ABA and
Fouse, Beth. A Treasure Chest of Behavioral Strategies for
Individuals with Autism. Arlington, TX: Future Horizons, 1997.
Harris, Sandra L., and Mary Jane Gill-Weiss. Right from the
Start: Behavioral Intervention for Young Children with Autism: A
Guide for Parents and Professionals. Rockville, MD: Woodbine
Lovaas, Ivar, MD, and others. Teaching Developmentally Disabled
Children: The ME Book. Austin, TX: Pro-Ed, 1981.
Lovaas, Ivar, MD, et al. Teaching Individuals with Developmental
Delays: Basics. Austin, TX: Pro-Ed, 2002.
Luiselli, James K., and Michael J. Cameron, editors. Antecedent
Control: Innovative Approaches to Behavioral Support. Baltimore,
MD: Paul H. Brookes Publishing, 1998.
Maurice, Catherine, Gina Green, and Stephen C. Luce, editors.
Behavioral Intervention for Young Children with Autism. Austin,
TX: Pro-Ed, 1996.
The Journal of Applied Behavior Analysis (JABA)
Department of Human Development
University of Kansas
Lawrence, KS 66045-2133
JABA is the professional journal for ABA practitioners and
researchers. Its web site includes a searchable index of
The Me List
The Me List is a private, archived mailing list on ABA and
related topics. It offers lots of "how to" and "how it worked"
information. To subscribe, send email to moderator Ruth Allen.
This site offers links related to animal-assisted therapy and
Island Dolphin Care
One of several facilities that provide dolphin-assisted therapy.
North American Riding for the Handicapped Association
This site provides information on hippotherapy (horse-assisted
therapy) for autism and other disorders, as well as referrals to
Davalos, Sandra. Making Sense of Art: Sensory-Based Art
Activities for Children with Autism, Asperger Syndrome, and
Pervasive Developmental Disorders. Shawnee Mission, KS: Autism
Asperger Publishing, 1999.
Flowers, Tony. Reaching Children with Autism Through Art:
Practical Fun Activities to Enhance Motor Skills and to Improve
Tactile and Concept Awareness. Arlington, TX: Future Horizons,
ASAFARI Gallery of Autistic Spectrum Art
This online art gallery is great, and includes some information
on art therapy for people with ASDs.
Auditory integration and related therapies
Alvin, Juliette, and Warwick, Auriel. Music Therapy for the
Autistic Child. Oxford, UK: Oxford University Press, 1991.
Berard, Guy, Monnier-Clay, Simone, and Rimland, Bernard. Hearing
Equals Behavior. New Canaan, CT: Keats Publishing, 1993.
National Autistic Society. A Visit to the Light and Sound Therapy
Centre. Pamphlet. London: NAS, 1996.
Stehli, Annabel. The Sound of a Miracle: A Child's Triumph over
Autism. Westport, CT: Georgiana Organization, 1997. This is a
mother's account of her autistic daughter's "recovery" via
Tomatis, Alfred, MD. The Ear and Language. Ontario: Moulin
Cognitive Concepts Inc.
990 Grove Street
Evanston, IL 60201
(847) 328-8099 or (888) 328-8199
Fax (847) 328-5881
This company offers Earobics, an AI-like package for home or
Vision Audio Inc.
611 Anchor Drive
Joppa, MD 21085
Vision Audio provides Electronic Auditory Stimulation effect
(EASe) recordings, engineered for a relaxing effect on people
with auditory sensitivities.
Scientific Learning Corporation
300 Frank H. Ogawa Plaza, Suite 500
Oakland, CA 94612-2040
Fax (510) 444-3580
SLC sells FastForWord and other well-tested software for helping
people with speech, language, and auditory processing disorders.
Society for Auditory Intervention Techniques
1040 Commercial Street SE, Suite 306
Salem, OR 97302
The Tomatis Method
This web site provides information about the Tomatis method of
AIT in English and Spanish, and also lists centers in the US,
Canada, and Mexico.
Twachtman-Cullen, Diane. A Passion to Believe: Autism and the
Facilitated Communication Phenomenon. Boulder, CO: Westview
Floor-time play therapy and similar interventions
Hewett, David, and Nind, Melanie. Interaction in Action:
Reflections on the Use of Intensive Interaction. London: David
Fulton Publishers, 1998.
Greenspan, Stanley, MD. Floor Time. This videotape is about using
floor-time techniques with typically developing children, but
many parents and professionals will find it useful to see the
method in action.
VanFleet, Risk. Filial Therapy: Strengthening Parent-Child
Relationships Through Play. Sarasota, FL: Professional Resource
About Floor Time
This web site explains basic floor-time concepts and ideas, and
includes a question-and-answer section.
Family Enhancement and Play Therapy Center
P.O. Box 613
Boiling Springs, PA 17007
Fax (717) 249-9479
Child-Centered Play Therapy with Risk VanFleet, Ph.D. Video on
techniques used in child-centered play therapy (CCPT) and filial
Dr. Stanley Greenspan
Several of Dr. Stanley Greenspan's books are listed under
"Parenting and siblings," earlier in this appendix. Audiotapes of
his lectures on using floor-time techniques and other
interventions can be ordered through his web site, as can
The Irlen Institute
The Irlen Institute's web site includes pointers to practitioners
who can fit the Irlen system and a company newsletter, among
Occupational therapy and sensory integration
Anderson, Elizabeth, and Pauline Emmons. Unlocking the Mysteries
of Sensory Dysfunction: A Resource for Anyone Who Works with, or
Lives with, a Child with Sensory Issues. Arlington, TX: Future
Ayres, Jean, and Jeff Robbins. Sensory Integration and the Child.
Los Angeles, CA: Western Psychological Services, 1983.
Bissel, Julie, and others. Sensory Motor Handbook: A Guide for
Implementing and Modifying Activities in the Classroom. Torrance,
CA: Sensory Integration International, 1988.
Kranowitz, Carol Stock. The Out-of-Sync Child: Recognizing and
Coping with Sensory Integration Dysfunction. New York: Perigee,
Kranowitz, Carol. Answers to Questions Teachers Ask About Sensory
Integration. Las Vegas, NV: Sensory Resources, 2001. A video
version is also available.
Reisman, Judith E., producer. Video: Making Contact: Sensory
Integration and Autism. Glendale, AZ: Center for
Neurodevelopmental Studies, 1993. Available through Continuing
Education Programs of America (CEPA) at (309) 263-0310.
Reisman, Judith E., producer. Video: Sensory Processing for
Parents: From Roots to Wings. Glendale, AZ: Center for
Neurodevelopmental Studies, 1996. Available through Continuing
Education Programs of America (CEPA) at (309) 263-0310.
This catalog offers therapy equipment, clothing, and other items
designed for people with SI dysfunction.
Sensory Integration International (SII)
1514 Cabrillo Avenue
Torrance, CA 90501
Fax (310) 787-8130
Referrals to SII-qualified occupational therapists, books, and
other materials for sensory integration can be accessed through
SI Supplies and Equipment
This web site has links to many manufacturers of sensory
integration and occupational therapy equipment.
Beck, Victoria, and Gary Beck. Unlocking the Potential of
Secretin. San Diego, CA: Autism Research Institute, 1998. This is
a short, parent-written book about the successful use of secretin
to treat an autistic child.
"Autism and Secretin"
This online research paper by John Wills Lloyd also has links to
The Use of Secretin for the Treatment of Autism
This web site includes the full text of the "Dateline" show that
featured Victoria and Gary Beck and their son, references to
related journal articles, and regularly updated data.
Social skills training
Gray, Carol. Comic Strip Conversations. Arlington, TX: Future
Gray, Carol. The New Social Story Book. 2nd illustrated edition.
Arlington, TX: Future Horizons, 2001.
Gray, Carol. Taming the Recess Jungle: Socially Simplifying
Recess for Students with Autism and Related Disorders. Arlington,
TX: Future Horizons, 1993.
Greenspan, Dr. Stanley I., with Jacqueline Salmon. Playground
Politics: Understanding the Emotional Life of Your School-Age
Child. Reading, MA: Addison-Wesley, 1993.
Mannix, Darlene. Social Skills Activities for Special Children.
New York: Prentice Hall, 1993. Teacher's guide with reproducible
Myles, Brenda, and Jack Southwick. Asperger Syndrome and
Difficult Moments: Practical Solutions for Tantrums, Rage, and
Meltdowns. Shawnee Mission, KS: Autism Asperger Publishing, 1999.
Simpson, Richard, editor. Social Skills for Students with Autism.
2nd edition. Reston, VA: Council for Exceptional Children, 1997.
Speech therapy and communication
Carr, Edward G. How to Teach Sign Language to Developmentally
Disabled Children. H & H Enterprises, 1981.
Crystal, David, editor. The Cambridge Encyclopedia of Language.
Cambridge, UK: Cambridge University Press, 1987.
Freeman, Sabrina, and Lorelei Dake. Teach Me Language: A Language
Manual for Children with Autism, Asperger's Syndrome, and Related
Developmental Disorders. Langley, British Columbia: SKF Books,
1996. A set of worksheets and forms is also available for use
with this guidebook.
Lund, Nancy J., and Judith F. Duchan. Assessing Children's
Language in Naturalistic Contexts. 3rd edition. Englewood Cliffs,
NJ: Prentice Hall, 1993.
Schwartz, Sue, and Joan E. Heller Miller. The New Language of
Toys: Teaching Communication Skills to Special-Needs Children.
Rockville, MD: Woodbine House, 1996.
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(301) 897-8682 or (800) 638-8255
Apraxia-Kids mailing list
This mailing list covers oral motor apraxia and related
disabilities. The web site is also superb. To subscribe, send an
email with the message "subscribe apraxia-kids FirstName
307 Arizona Street
Bisbee, AZ 85603
(520) 432-5741 or (800) 828-1376
Fax (800) 737-1376
Speech therapy and occupational therapy materials can be ordered
This firm has a great catalog of assistive technology and
Super Duper Publications
Department SD 98
P.O. Box 24997
Greenville, SC 29616-2497
(864) 288-3536 or (800) 277-8737
Fax (800) 978-7379
SuperDuper has a huge catalog of speech and language learning
materials, games, videos, books, and tests. It also includes
items related to augmentative communication, social skills, and
Baker, Sidney M., MD, and Pangborn, Jon, PhD. Defeat Autism Now!
(DAN!) Clinical Options Manual. San Diego, CA: Autism Research
Institute. Written especially for physicians, this collection of
data and suggestions for treating ASDs is updated regularly with
information from the yearly Defeat Autism Now! conference.
Parents who don't have access to a DAN! doctor may wish to buy
this as a guide for their regular physician, or as a guide for
setting up their own treatment plan.
Cohen, Donald J., and Fred R. Volkmar, editors. Handbook of
Autism and Pervasive Developmental Disorders. 2nd edition. New
York: Wiley, 1997. This is the most current collection of
research data and papers related to autistic spectrum disorders.
It compares and contrasts studies from around the world. It's in
medical language, but not impossible to read. Expensive--check
your nearest medical library.
Gillberg, Christopher, and Mary Coleman. The Biology of the
Autistic Syndromes. Cambridge, UK: Cambridge University Press,
1992. Heavy-duty reading. It covers brain-imaging studies, genetics,
and more. A great deal has been uncovered since 1992, but this
book is still useful for those who want the hard medical facts.
Medscape provides a searchable, online index to hundreds of
medical journals. Many articles are available in full, others as
Free interface for searching the MEDLINE medical database, which
can help you find out about studies, medications, and more.
Books about medications
There are a number of books available that list side effects,
cautions, and more regarding medications. The biggest and best is
the Physicians Desk Reference (PDR), but its price is well out of
the average parent's or patient's league. You may, however, find
a used but recent copy at a good price.
Also, in Autistic Spectrum Disorders by Mitzi Waltz,
Chapter 5, "Medical Interventions," and Appendix E, Medication
Reference, cover most of the commonly used medications for ASD
Those persons with allergies to food dyes, or to corn, wheat, and other
materials used as fillers in pills, need to consult the
British Medical Association and the Royal Pharmaceutical Society
of Great Britain. The British National Formulary (BNF). This
standard reference for prescribing and dispensing drugs in the UK
is updated twice yearly.
Gorman, Jack M., MD. The Essential Guide to Psychiatric Drugs.
New York: St. Martin's Press, 1998.
Silverman, Harold M., editor. The Pill Book. 10th edition. New
York: Bantam Books, 2002.
Sullivan, Donald. The American Pharmaceutical Association's Guide
to Prescription Drugs. New York: Signet, 1998.
Web sites about medications
Canadian Drug Product Database
Dr. Bob's Psychopharmacology Tips
Excellent information on psychiatric drugs, including things like
the MAOI dietary restrictions and common SSRI interactions, from
Dr. Robert Hsiung.
Federal Drug Administration (FDA)
Official US information on new drugs and generic versions of old
drugs, FDA warnings and recalls, and so forth is archived here.
The Internet Drug List
Mail Order Pharmacies
14 James Street North, Suite 3000
Hamilton, Ontario L8R 2J9
This is a consortium of Canadian pharmacies set up specifically
to provide discounted prescriptions to US customers, although
Canadians and others can use the service as well. You must have a
valid, signed prescription.
CVS ProCare Pharmacy (previously Stadtlanders Pharmacy)
600 Penn Center Boulevard
Pittsburgh, PA 15235-5810
CVS is the new name of Stadtlanders Pharmacy, which has long
enjoyed a stellar reputation in the disability community.
2201 W. Sample Road, Building 9, Suite 1-A
Pompano Beach, FL 33073
(954) 969-1230 or (800) 881-6325
Fax (800) 881-6990
Farmacia Rex S.R.L.
Esq. Azcuinaga 1120
Buenos Aires, Argentina
Fax (54-1) 962-0153
This South American pharmacy has deeply discounted prices.
4024 Carrington Lane
Efland, NC 27243
(919) 304-4278 or (800) 526-6447
Fax (919) 304-4405
Masters Marketing Company, Ltd.
5 Snadridge Close
Harrow, Middlesex HA1 1TW
(011) 44 181 424 9400
Fax (011) 44 208 427 1998
MMC carries a limited selection of European and American
pharmaceuticals for customers worldwide.
No Frills Pharmacy
1510 Harlan Drive
Bellevue, NE 68005
Fax (800) 522-5360
This chain, based in Austin, Texas, provides mail order service
and can also compound medications.
3 Coal Street
Silverwater, NSW 2128
(02) 9648-8888 or (1300) 656-245
Fax (02) 9648 8999 or (1300) 656 329
You must have a prescription from an Australian doctor to use
this mail order service, although they will ship to New Zealand
The Pharmacy Shop
5007 N. Central
Phoenix, AZ 85012
(602) 274-9956 or (800) 775-6888
Fax (602) 241-0104
Victoria Apotheke (Victoria Pharmacy)
Dr. C. Egloff
P.O. Box CH-8021
(01) 211-2432 (Europe) or (011) 411-211-24 32 (US)
Fax (01) 221-2322 (Europe) or (011) 411-221-2322 (US)
You may be able to get medications free just by providing
documentation to charitable programs run by pharmaceutical
companies. In the US, the Pharmaceutical Manufacturers
Association publishes a directory of programs for indigent
patients, with contact details listed by company. Doctors can get
a copy of the PMA's official guide by calling (800) 762-4636, and
patients can browse the online version at
Most indigent patient programs require that you have no insurance
coverage for outpatient prescription drugs, that purchasing the
medication at retail price would be a hardship for you because of
your income and/or expenses, and that you do not qualify for a
government or third-party program that can pay for the
The Medicine Program
P.O. Box 515
Doniphan, MO 63935-0515
The Medicine Program can help you sign up with indigent patient
The Doug Flutie, Jr. Foundation for Autism
c/o The Giving Back Fund
230 Congress Street
Boston, MA 02110
Fax (617) 426-5441
Founded by pro football player Doug Flutie, who is the father of
an autistic son, this foundation raises funds to help
disadvantaged families pay for treatment and to support research
efforts. It does not give direct grants to families, but a
nonprofit treatment organization can apply for help to pay for
your child's program.
If you need medical assistance in a location far from home but
can't afford the cost of a flight or hotel, the following
resources may be able to help. If you are outside North America,
contact your national airline for assistance and advice.
6202 South Lewis Avenue, Suite F2
Tulsa, OK 74136-1064
(918) 745-0384 or (800) 260-9707
5775 Wayzata Boulevard, Suite 700
Minneapolis, MN 55416
Hope Air/Vols d'Espoir
Procter & Gamble Building
4711 Yonge Street
Toronto, Ontario M2N 6K8
Miracle Flights for Kids
2756 N. Green Valley Parkway, No. 115
Green Valley, NV 89014-2120
National Association of Hospital Hospitality Houses
P.O. Box 18087
Ashville, NC 28814-0087
c/o Mercy Medical Airlift
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
Genetic counselors have special training in helping families
understand the implications of having a member diagnosed with a
genetic disorder. They can explain whether these disorders will
be passed on to a diagnosed person's children, and help you
assess associated risks. They can also provide information about
genetic testing for other family members.
American Board of Genetic Counseling Inc.
9650 Rockville Pike
Bethesda, MD 20814-3998
Fax (301) 571-1895
The ABGC credentials professionals in the field of genetic
counseling, and can help you find a reputable member via phone,
mail, or its web site.
Children's Hospital and Regional Medical Center
P.O. Box 5371
Seattle, WA 98105-0371
Fax (206) 527-5743
GeneTests and GeneClinics are federally funded genetic testing
resources. The web site provides a list of genetic research and
clinical laboratories, descriptions of genetic testing and
counseling, and information for patients and professionals.
European Society of Human Genetics
Clinical Genetics Unit
Birmingham Women's Hospital
Birmingham B15 2TG United Kingdom
Human Genetics Society of Australasia
Royal Australian College of Physicians
145 Macquarie Street
Sydney, NSW 2000 Australia
Fax (02) 9251-8174
Gray, Carol. What's Next? Preparing the Student with Autism or
Other Developmental Disabilities for Success in the Community.
Arlington, TX: Future Horizons, 1992.
Debbault, Dennis. Autism, Advocates, and Law Enforcement
Professionals: Recognizing and Reducing Risk Situations for
People with Autistic Spectrum Disorders. London: Jessica Kingsley
Publishers, 2001. Debbault explores problems that can happen when
people with ASDs encounter the police.
Hingsburger, Dave. Just Say Know! Understanding and Reducing the
Risk of Sexual Victimization of People with Developmental
Disabilities. Eastman, Quebec: Diverse City Press, 1995.
Howlin, Patricia. Autism: Preparing for Adulthood. London:
Routledge, 1997. Transition planning, with special attention to
resources and possibilities in the UK.
Meyer, Roger. Asperger Syndrome Employment Workbook. London:
Jessica Kingsley Publishers, 2000. Written by a person with AS,
this excellent workbook can help adults understand their
vocational interests and secure employment.
Morgan, Hugh. Adults with Autism: A Guide to Theory and Practice.
Cambridge, UK: Cambridge University Press, 1996.
Mortlock, John. The Socio-Sexual Development of People with
Autism and Related Learning Disabilities (pamphlet). London:
National Autistic Society, 1993.
Slater-Walker, Gisela, and Christopher Slater-Walker. An Asperger
Marriage. London: Jessica Kingsley Publishers, 2002. This
personal story from a man with AS and his nondisabled partner
illustrates issues that come up in family relationships.
Smith, Marcia Datlow, Ronald G. Belcher, and Patricia D. Juhrs. A
Guide to Successful Employment for Individuals with Autism.
Baltimore: Paul H. Brookes Publishing, 1995.
Sobsey, Dick, et al., editors. Disability, Sexuality, and Abuse:
An Annotated Bibliography. Baltimore: Paul H. Brookes Publishing,
National Information Center for Children and Youth with
Disabilities. Transition Planning: A Team Effort. NICHY, P.O. Box
1492, Washington, DC 20013, (202) 884-8200 or (800) 695-0285, or
on the Web at