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The following resources related to Hydrocephalus are from the book Hydrocephalus: A Guide for Patients, Families, and Friends by Chuck Toporek & Kellie Robinson, copyright 1999, published O'Reilly & Associates, Inc. To order, or get more information about this book, call 1-800-998-9938. Permission is granted to print and distribute this list of resources for noncommercial use as long as the above source is included. This information is meant to educate andshould not be used as an alternative for professional medical care.

The following list of web site addresses is intended to provide you with additional resources to locate information about hydrocephalus and related topics. Many of the organizations in this list have web sites as well.


Beth Israel Medical Center - Hydrocephalus

Hydrocephalus Brochure
(Available from the American Association of Neurological Surgeons)

Hydrocephalus Facts & Links

Hydrocephalus Index, Bowman Gray/Wake Forest

Hydrocephalus Project at the Cleveland Clinic Foundation

Hydrocephalus, Syrinx, Myelomeningocele Resource Guide

Spina Bifida, Syrinx, Hydrocephalus Home Page at Massachusetts General Hospital/Harvard Medical School

The University of Adelaide, Paediatric Neurosurgery Department–Hydrocephalus

Personal home pages

Chris Riccio's Home Page

Nancy Bradley's Maternal Hydrocephalus Page

Chat rooms and listservs

HYCEPH-L (The Hydrocephalus Listserv)

Hydrohaven Chat Room

Massachusetts General Hospital Neurology–Neurology Web-Forum

Disabilities and special education

Americans with Disabilities Act Document Center

Council for Exceptional Children (CEC)

National Institute on Disability and Rehabilitative Research (NIDRR)

National Library Service for the Blind and Physically Handicapped

Office of Special Education and Rehabilitative Services (OSERS)

OSERS: Office of Special Education Programs (OSEP)

OSERS: IDEA '97 Home Page

Rare Genetic Diseases in Children: Disability Resources Directory

U.S. Department of Justice ADA Home Page

U.S. Department of Justice: Americans with Disabilities Act (ADA)


AANS Glossary of Neurosurgical Terms

The Cleveland Clinic Foundation,
Department of Neurological Surgery

MGH Neurology–Neurology Web-Forum

(American Association of Neurological Surgeons)

Neurosurgery at Massachusetts General Hospital/Harvard Medical Center

Neurosurgery Links

Pediatric Neurosurgery%#150;Hydrocephalus

Third Ventriculostomy

The University of North Carolina-Chapel Hill,
Division of Neurosurgery

Imaging (CT, MRI, and radiology)

Joint Program in Nuclear Medicine

Nuclear Medicine at Children's Hospital, Boston

Shields Health Care Group

What Is Computed Tomography?
(Advanced Research and Applications Corporation–ARACOR)

The Whole Brain Atlas

Shunt manufacturers


Medtronic: PS Medical

Radionics: Hydrocephalus Shunt Products


Neuropsychology Central

Pediatric Neuropsychology in Medial Settings

Hospitals and medical centers

Beth Israel Hospital
Institute for Neurology and Neurosurgery

Children's Hospital Boston

Children's Hospital of Pittsburgh

The Children's Hospital of Philadelphia

The Hospital for Sick Children


Montreal Neurological Institute and Hospital

Shands for Kids

Health care information

Centers for Disease Control and Prevention (CDC):
Prevention of Neural Tube Defects (NTDs)

Dr. Koop's Community
(by Dr. C. Everett Koop, former U.S. Surgeon General)


National Health Information Resource Center (NHIRC)


Public Citizen: Health Research Group


Government and health care law

Centers for Disease Control and Prevention (CDC)

Federation of State Medical Boards (FSMB)

Health Industry Manufacturers Association (HIMA)

Health Policy Sites at George Washington University

Legislation: Bills, Amendments, and Laws

National Institutes of Health (NIH)

Selected Internet Resources in Health Law and Policy

State Insurance Commissioners

THOMAS–U.S. Congress on the Internet

Search sites

GALEN II–The UCSF Digital Library

Internet Grateful Med


U.S. National Library of Medicine (NLM)

WelchWeb: Welch Medical Library, Johns Hopkins University

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