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Patient-Centered Guides

March 2001

Internet Pioneer Pens Guide to Adult Leukemia

SEBASTOPOL, CA -- To the thousands who have regularly visited her Web site or subscribed to one of her 30 Internet mailing lists, since 1995 Barbara "Granny Barb" Lackritz has been recognized as the leading wired patient advocate for those adults diagnosed with leukemia. As someone who is a survivor of the illness and who has communicated her experiences and knowledge to thousands of others online, in March 2001 Lackritz again expands her patient reach with the publication of her first book, Adult Leukemia: A Comprehensive Guide for Patients and Families (Patient-Centered Guides; $29.95).

Her book is a no-nonsense, step-by-step presentation of the knowledge she has gleaned from her personal experiences, and from the thousands of others who have shared their experiences. The 536-page book addresses diagnosis and medical tests, locating a good oncologist, characteristics of leukemia (an often baffling condition to identify), treatment options and their side-effects, emotional responses, and community support. Sprinkled through the book are personal stories of those whose lives have been impacted by adult leukemia. The book culminates in a comprehensive resource list of leukemia-specific organizations, books, medical resources, drug information, alterative health resources, and patient support organizations.

"Patients' experience with leukemia may be their most vulnerable, powerless experience since early childhood," says Lackritz. "Getting the support they need is critical to adequate recovery, especially during and after relatively risky procedures such as bone marrow transplants. While nobody knows better than patients how they interact with doctors, nurses, insurance companies, family members, and co-workers, my past experiences and those of other leukemia survivors may help patients spot troubles before they arise, or view old problems in a new way."

About the Author

For 40 years Lackritz worked as a speech and language pathologist. Today she dedicates her time to her volunteer work as a patient advocate, including volunteering for the Association of Cancer Online Resources (ACOR); cooperating with the Leukemia and Lymphoma Society's First Connection; the Anderson Network and Dana Farber Cancer Institute Patient to Patient programs; speaking at cancer patient support programs nationally; and as a participant in the Cancer Survivor's Network. She is a member of the Council of Public Representatives for the Director of the National Institutes of Health.

Adult Leukemia: A Comprehensive Guide for Patients and Families
by Barbara Lackritz
$29.95, 536 pages, paperback
ISBN: 0-596-50001-7

About Patient-Centered Guides

Patient empowerment is at the core of Patient-Centered Guides. We believe that people are empowered when they have the knowledge and skills to partner with their doctor or healthcare provider to get the best medical care possible.

We publish books that contain clear, concise, easy to understand information about the medical, practical and emotional aspects of health issues. Our authors are experts in specific conditions and diseases and are the driving forces behind building strong and networked communities of patients, families and caregivers.

In addition to our books, we publish information on the web. Our site is an extension of our mission to empower individuals to become informed health-conscious consumers.

Patient-Centered Guides is a division of O'Reilly & Associates, Inc. O'Reilly is recognized worldwide for its technical books that fill a void and provide value to people who are experiencing information pain. O'Reilly publishes books that make a difference in people's lives.

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