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Patient-Centered Guides

October 1999

Childhood Cancer/Childhood Leukemia, 2nd Edition

As Honna Janes-Hodder's 7-year-old son lay dying after battling neuroblastoma for four years, he gave her one last gift. Though deep in a coma, Matthew said, "I am not afraid." She kissed him and made three promises: I will love you forever, I will miss you for always, and I will never stop fighting for children like you. He died 45 minutes later.

Honna has kept her promises. With Nancy Keene, she has written Childhood Cancer: A Parent's Guide to Solid Tumor Cancers. More than 3,000 children are diagnosed with these diseases every year. Childhood cancer and its treatment can have devastating effects on family, friends, schoolmates, and the larger community. This is the first book ever to address the problems faced by families of children with solid tumors. Honna and Nancy, whose daughter is a leukemia survivor, combine personal experiences, advice from over 100 families, and the latest medical information to publish a unique and comprehensive book.

Reviewed by some of the world's best known doctors who conduct research on behalf of children with solid tumors, Childhood Cancer provides parents with:

  • A basic understanding of medical terminology, chemotherapy, and common side effects of treatment.

  • Information on diagnosis through end of treatment, as well as sections on relapse and bereavement.

  • Practical advice on how to deal with procedures, hospitalization, s chool, family and friends, and social and financial issues.

  • Advice on how to work effectively with medical personnel.

  • Stories from parents describing their emotional ups and downs and how they molded their family lives around hospitalizations.
Nancy Keene's life changed on Valentines' Day, 1992 when her three-year-old daughter was diagnosed with acute lymphoblastic leukemia. Since then, she's spent a majority of her time advocating for and supporting her daughter (who is now 11 years old), as well as sharing her knowledge with other parents who are experiencing similar situations with their children.

Newly revised and updated, Childhood Leukemia: A Guide for Families, Friends, and Caregivers by Nancy Keene is considered the bible for families of children with leukemia. The first edition is relied upon by hundreds of parents and caregivers as the definitive source of information on childhood leukemia. It is so well known on the Internet that families of children with leukemia who join cyber support groups are simply told to "Get Nancy's book."

This new edition includes:

  • Clear explanations of state-of-the-art treatments, including bone marrow transplants, new chemotherapy drugs, and new drugs and methods for coping with side effects.

  • Technical medical information, practical advice, and many real-life stories from parents and children.

  • A treatment history "record keeper" at the back of the book to summarize treatment information that will be needed by future caregivers and to keep as a permanent record.

  • Extensive listings of updated resources on sources for medical information, emotional support, and financial assistance.

  • Complete listings of books, videos, and Internet resources.

  • A foreword by Dr. F. Leonard Johnson, Chief of Pediatric Hematology/Oncology at Oregon Health Sciences University.

About the Authors

Honna Janes-Hodder is the founder of ChildCan, The Childhood Research Association of Newfoundland and Labrador. She manages most of the pediatric discussion groups for ACOR, the Association of Cancer Online Resources, Inc. and is the administrator of five online discussion groups, providing support and reliable information to families dealing with childhood cancers globally.

Nancy Keene is one of the original developers of the Patient-Centered Guides series. She has been involved with the medical world for over two decades, as a caregiver and a patient. Keene is the author of four books, Childhood Cancer, Childhood Leukemia, Working with Your Doctor, and Your Child in the Hospital.

Both authors are considered experts in the medical world and are patient advocates in the Children's Cancer Group, a large organization of pediatric oncology physicians and researchers. As mothers, both have experienced the pain of having a child with a serious illness.

Childhood Cancer: A Parent's Guide to Solid Tumor Cancers
by Honna Janes-Hodder and Nancy Keene
$24.95, 540 pages, paperback
ISBN: 1-56592-531-9

Childhood Leukemia: A Guide for Families, Friends & Caregivers, 2nd Edition
by Nancy Keene
$24.95, 568 pages, paperback
ISBN: 1-56592-632-3

About Patient-Centered Guides

Patient empowerment is the central theme at the core of the Patient-Centered Guides series. We believe that people are empowered when they have the knowledge and skills to partner with their doctor or healthcare provider to get the best medical care possible.

We publish books that contain clear, concise, easy to understand information about the medical, practical and emotional aspects of health issues. All of our authors are experts in specific conditions and diseases and are the driving forces behind building strong and networked communities of patients, families and caregivers.

In addition to our books, we publish information on the Web. Our site is an extension of our mission to empower individuals to become informed health-conscious consumers.

Patient-Centered Guides is a division of O'Reilly & Associates, Inc. O'Reilly is recognized worldwide for its technical books that fill a void and provide value to people who are experiencing information pain. O'Reilly publishes books that make a difference in people's lives.

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