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Childhood Cancer Survivors

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The following excerpt is taken from Appendix B of Childhood Cancer Survivors: A Practical Guide to Your Future by Nancy Keene, Wendy Hobbie & Kathy Ruccione, copyright 2000 by O'Reilly & Associates, Inc. For book orders/information, call (800) 998-9938. Permission is granted to print and distribute this excerpt for noncommercial use as long as the above source is included. The information in this article is meant to educate and should not be used as an alternative for professional medical care.

Books can be borrowed from your local library or ordered through interlibrary loan. Most libraries now have a computerized database of all materials available in their various branches. A librarian can show you how to use this system, how to request a book from another branch, and how to place a book on hold if it is currently checked out. If a book is not in your library's collection, ask the librarian if she can obtain it from another library by requesting an interlibrary loan. This is common practice and allows you to borrow medical texts from university or medical school libraries. You can also purchase books from your local bookstore, your favorite online bookseller, or direct from the publisher.

General

Babcock, Elise NeeDell. When Life Becomes Precious: A Guide for Loved Ones and Friends of Cancer Patients. New York: Bantam Books, 1997.

Halvoson-Boyd, Glenna, and Lisa Hunter. Dancing in Limbo: Making Sense of Life After Cancer. Jossey-Bass, 1995.

Harpham, Wendy Schlessel. After Cancer: A Guide to Your New Life. New York: W.W. Norton & Co., 1994.

Hoffman, Barbara, ed. A Cancer Survivor's Almanac: Charting Your Journey. Minneapolis: Chronimed Publishing, 1996.

Koocher, G.P. The Damocles Syndrome: Psychological Consequences of Surviving Childhood Cancer. New York: McGraw-Hill, 1981. Out of print, but may be in library.

Morra, M., and E. Potts. Triumph: Getting Back to Normal When You Have Cancer. New York: Avon Books, 1997.

Murphy, G.P., et al. Informed Decisions: The Complete Book of Cancer Diagnosis, Treatment and Recovery. New York: Viking, 1997.

Nessim, Susan, and Judith Ellis. Cancervive: The Challenge of Life After Cancer. Boston: Houghton Mifflin Co., 1991.

Genetics

Gould, R.L. Cancer and Genetics: Answering Your Patients' Questions, A Manual for Clinicians and Their Patients. New York: PRR and the American Cancer Society, 1997. Available from PRR, Inc., 17 Prospect Street, Huntington, NY 11743.

Teichler-Zallen, Doris. Does It Run in the Family? A Consumer's Guide to DNA Testing for Genetic Disorders. Rutgers University Press, 1997.

Hearing impairments

Ogden, Paul W. The Silent Garden: Raising Your Deaf Child. Gallaudet University Press, 1996.

Schwartz, Sue. Choices in Deafness: A Parent's Guide to Communication Options, Second Edition. Woodbine House, 1996.

Hepatitis C

Askari, Fred K. Hepatitis C, The Silent Epidemic: The Authoritative Guide. Plenum Publishing, rev. ed., 1999.

Everson, Gregory T., and Hedy Weinberg. Living with Hepatitis C: A Survivor's Guide. Hatherleigh Press, rev. ed., 1999.

Infertility

Aronson, Diane, ed. Resolving Infertility: Understanding the Options and Choosing Solutions When You Want to Have a Baby. Harper Resource, 1999.

Peoples, Debby, and Harriette Rovner Ferguson. What to Expect When You're Experiencing Infertility: How to Cope with the Emotional Crisis and Survive. W.W. Norton & Co., 2000.

Insurance

Khanna, V. Managed Care Made Easy. Allentown, PA: People's Medical Society, 1997.

Thomas, William, ed. All About Medicare, 1999 Edition. Cincinnati: The National Underwriter Company, 1999.

Learning disabilities

Anderson, Winifred, and Stephen Chitwood. Negotiating the Special Education Maze: A Guide for Parents and Teachers, Third Edition. Woodbine House, 1997.

Kravets, Marybeth, and Imy F. Wax, eds. The K & W Guide to Colleges for the Learning Disabled, Second Edition. New York: Harper Collins, 1993.

Mangrum, Charles T., and Stephen S. Strichart, eds. Colleges with Programs for Students with Learning Disabilities, Fourth Edition. Princeton, NJ: Peterson's Guides, 1994.

Thompson, Sue. The Source for Non-Verbal Learning Disabilities. East Moline, IL: LinguiSystems, 1997. (800) PRO-IDEA.

Limb loss

Winchell, Ellen. Coping with Limb Loss. Garden City Park, NY: Avery Publishing Group, 1995.

Karp, Gary. Life on Wheels. Sebastopol, CA: O'Reilly & Associates, 1999.

Partnership with medical team

Keene, Nancy. Working with Your Doctor: Getting the Healthcare You Deserve. Sebastopol, CA: O'Reilly & Associates, 1998.

Seizures

Freeman, H.N. Seizures and Epilepsy in Childhood: A Guide for Parents, Second Edition. Baltimore: Johns Hopkins Press, 1997.

Sexuality

Schover, Leslie R. Sexuality and Fertility after Cancer. New York: John Wiley Inc., 1997.

Statistics and epidemiology

Cancer Incidence and Survival among Children and Adolescents: United States SEER Program 1975-1995. Bethesda, MD: National Institutes of Cancer, 1999. Available free from (800) 4-CANCER or http://www-seer.ims.nci.nih.gov/.

Technical information on late effects

Green, Daniel, MD, and Giulio D'Angio, MD, eds. Late Effects of Treatment for Childhood Cancer. New York: Wiley-Liss, 1992.

Mauch, Peter. Hodgkin's Disease. Philadelphia: Lippencott, Williams, and Wilkins, 1999. Chapters 32 to 36 cover late effects of treatment for Hodgkin's disease.

Pizzo, Philip, and David Poplack. Principles and Practice of Pediatric Oncology. Philadelphia: Lippencott-Raven, 1997. Chapter 50, "Late Effects of Childhood Cancer and its Treatment."

Schwartz, Cindy, MD, and Wendy Hobbie, RN, Louis Constine, MD, Ruccione, Kathleen, RN, eds. Survivors of Childhood Cancer: Assessment and Management. St. Louis: Mosby-Year Book, Inc., 1994. Out of print, but may be available at a medical school or hospital library.


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