Ovarian Cancer Resources
This list includes resources you're likely to use most often and those that
are the richest sources of specific information on ovarian cancer. All
entries in each category are listed in alphabetical order, not by
Ovarian cancer organizations
Gilda's Club, Inc.
195 West Houston Street
New York NY 10014
Gilda's Club is a nonprofit organization that provides home-like places for
cancer patients, their families, and friends to meet for social and
emotional support. They sponsor support groups, workshops, and social
National Ovarian Cancer Coalition, Inc.
500 NE Spanish River Boulevard, Suite 14
Boca Raton, FL 33431
(888) OVARIAN or (561) 393-0005
A nonprofit organization devoted to raising awareness about ovarian cancer,
providing complete and accurate information about the disease, and raising
funds for research and education. The comprehensive web site includes
resource lists, frequently asked questions, contact information for online
and community support organizations, and news.
Major organizations providing cancer
American Cancer Society (ACS) National Office
1599 Clifton Road NE
Atlanta, GA 30329-4251
The American Cancer Society has many national and local programs to help
cancer patients with travel, lodging, and emotional support. They also
offer a 24-hour support line for both English- and Spanish-speaking cancer
National Cancer Institute (NCI)
Bethesda, MD 20892
A division of the US National Institutes of Health, the NCI has an enormous
web site, numerous statements, booklets, and books about cancer treatment
and care, and a hotline to help cancer patients with a variety of issues
such as physician referrals. To learn of the newest treatments available,
call (800) 4-CANCER and ask for the PDQ (Physicians Data Query) summary for
ovarian cancer. These free statements explain the disease, state-of-the-art
treatments, and ongoing clinical trials. There are two versions available:
one for patients that uses simple language and contains no statistics and
one for professionals that is technical, thorough, and includes citations
to the scientific literature. The PDQ can also be found on the Internet at
Ovarian cancer Internet support
Internet support groups (listservs or chat rooms) are free email or chat
room discussions on specific topics of interest. Email subscribers receive
copies of emails sent by any members of the group to the listserv. Some
active groups generate dozens of messages a day. If you subscribe to the
"digest" mode, you will receive one email containing all of the messages
posted that day. Email discussion groups are an excellent way to connect
with people in similar circumstances.
Chat rooms can be either "live" chats or bulletin board-type chats. A live
chat is similar to walking into a room where a discussion is already taking
place except you will be typing your messages. In a bulletin board-type
chat room, a participant may post a message, and others will usually
respond right below that message. With any of these support groups, you may
elect to participate or just observe by reading the messages of others and
the responses that their messages generate.
ACOR (Association of Cancer Online Resources) hosts dozens of cancer
email discussion groups. Discussion groups hosted by ACOR include
OVARIAN--an unmoderated discussion list with over 1,000 subscribers. ACOR
also has discussion groups on CANCER, CANCER-FATIGUE, CANCER-PAIN,
CANCER-PARENTS, and dozens of others. ACOR offers a convenient automatic
subscription feature for discussion mailing lists at http://www.acor.org.
Click on mailing lists (on the left nav bar) then click on the group you
are interested in joining.
The National Ovarian Cancer Coalition (NOCC) hosts a chat area for
women with ovarian cancer. To participate, go to
www.ovarian.org/ and click on "Chat" listed under "Support" on
the left nav bar. They have a feature that allows participants to schedule
chat events on particular topics. The NOCC also hosts multiple listservs on
various topics including a resource list, awareness list, caregiver's list,
humor list, and others. To subscribe, click on "Mailing lists" under
"Support" on the left nav bar.
OncoLink, at the University of Pennsylvania, has an online FAQ
(document answering frequently asked questions) about cancer listservs at
you would like to learn a bit more about them and get answers to some
specific questions, this is a good place to start.
Books on ovarian cancer
Gilda's Disease: Sharing Personal Experiences and a Medical Perspective
on Ovarian Cancer by M. Steven Piver, MD, with Gene Wilder. Prometheus
No Time to Die: Living With Ovarian Cancer by Liz Tilberis and Aimee
Lee Ball. Avon, 1999.
General reading and reference
The Cancer Dictionary, Second Edition, by Robert Altman and Michael
Sarg. Checkmark Books, 1999.
A Cancer Survivor's Almanac: Charting Your Journey, edited by
Barbara Hoffman, JD.
John Wiley & Sons, 1998.
Everyone's Guide to Cancer Therapy, Third Edition, edited by Malin
Dollinger, MD. Andrews McMeel Publishing, 1998.
Informed Decisions: The Complete Book of Cancer Diagnosis, Treatment,
and Recovery by Gerald P. Murphy, Lois B. Morris, and Dianne Lange.
Choices in Healing: Integrating the Best of Conventional and
Complementary Approaches to Cancer by Michael Lerner. The MIT Press,
When a Parent Has Cancer: A Guide to Caring for Your Children by
Wendy Schlessel Harpham. HarperCollins, 1997.
The Chemotherapy and Radiation Therapy Survival Guide by Judith
McKay and Nancee Hirano. New Harbinger Publications, 1998.
Sexuality and Fertility After Cancer by Leslie R. Schover. John
Wiley & Sons, Inc., 1997.
When Life Becomes Precious by Elise Needell Babcock. Bantam Books,
Working with Your
Doctor by Nancy Keene. O'Reilly & Associates, Inc., 1998.
Steve Dunn, a cancer survivor, clearly explains cancer types and staging,
chemotherapy, pathology reports, and the pros and cons of researching your
own cancer. He recommends books, includes inspirational patient stories,
and has links to many of the best cancer sites on the Web.
An NCI sponsored comprehensive source of cancer information including types
of cancer, treatment options, clinical trials, genetics, coping, support,
resources, and cancer literature. CancerNet is one of the most
comprehensive information sources for cancer patients on the Net.
CanSearch: Online Guide to Cancer Resources
Service of the National Coalition for Cancer Survivorship that leads you
step-by-step through an online search.
A consumer-friendly database sponsored by the National Institutes of Health
that provides information on more than 4,000 federal and private medical
studies involving patients at more than 47,000 locations nationwide.
International newsletter for women fighting ovarian cancer.
Gilda Radner Familial Ovarian Cancer Registry
Roswell Park Cancer Institute hosts an international registry of families
with two or more members with ovarian cancer. They promote ovarian cancer
research and offer a help line, education, and peer support for women with
a high risk of ovarian cancer.
University of Pennsylvania cancer specialists founded OncoLink in 1994 to
help cancer patients, families, healthcare professionals, and the general
public get accurate cancer-related information at no charge. It contains
information on ovarian cancer, causes, treatment options, hormones, symptom
management, causes, psychosocial support and personal experiences.
The National Library of Medicine's free search service provides access to
the 9 million citations in MEDLINE (with links to participating on-line
journals) and other related databases. Also includes FAQs, news, and
Ovarian Cancer Research Notebook
The OCRN is a comprehensive list of articles on treatment for ovarian
cancer that contains approximately 3,000 documents. It is maintained and
upgraded by the National Ovarian Cancer Association of Toronto, Canada.
The Women's Cancer Network
Site developed by the Society of Gynecologic Oncologists to help prevent,
detect, and conquer cancer in women. It has cancer information, a
bookstore, survivor stories, links to other web sites, and a helpful
Free Air Services
Air Care Alliance
ACA is a nationwide association of humanitarian flying organizations.
Founded in 1990, ACA members have safely flown 24,000 patients to and from
Corporate Angel Network, Inc. (CAN)
Westchester County Airport, Building 1
White Plains, NY 10604
(800) 328-4226 or (914) 328-1313
A nationwide nonprofit program designed to give patients with cancer the
use of available seats on corporate aircraft to get to and from recognized
cancer treatment centers. Patients must be able to walk and travel without
life-support systems or medical attention. There are no cost or financial
Companies that will do medical information
searches for a fee:
Planetree Health Resource Center
Schine On-Line Services
The Health Resource, Inc.
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