Prostate Cancer Resources
This list includes resources you're likely to use most often and those that
are the richest sources of information specific to prostate cancer. All
entries in each category are listed in alphabetical order, not by
Organizations related to prostate
The American Prostate Society
7188 Ridge Road
Hanover, Maryland 21076
The American Prostate Society is a nonprofit organization dedicated to
increasing education, awareness, and service to the prostate cancer
CaP Cure (The Association for the Cure of Cancer of the
1250 Fourth Street
Santa Monica, CA 90401
(800) 757-CURE or (310) 458-2873
Founded by Michael Milken in 1993, CaP CURE identifies and supports
prostate cancer research to improve treatments and cures.
National Association for Continence
P.O. Box 8310
Spartanburg, SC 29305
The National Association for Continence (NAFC) is a nonprofit organization
dedicated to improving the quality of life for people with incontinence.
NAFC publishes a quarterly newsletter, resource guide of products and
services for incontinence, audio/visual programs, and other educational
National Prostate Cancer Coalition
1156 15th Street, NW
Washington, DC 20005
National Prostate Cancer Coalition is an organization dedicated to bringing
together and representing the interests of multiple organizations and
individuals with an interest in the prevention and the cure of prostate
cancer through funding prostate cancer research.
US Too International, Inc.
930 North York Road, Suite 50
Hinsdale, IL 60521-2993
(800) 808-7866 or (630) 323-1002
US TOO is an independent network of support group chapters for men with
prostate cancer and their families. US TOO groups offer fellowship, peer
counseling, and education about treatment options. It publishes a
newsletter and brochures and will refer to support groups.
Organizations providing general cancer
American Cancer Society (ACS) National Office
1599 Clifton Road NE
Atlanta, GA 30329-4251
The American Cancer Society has many national and local programs to help
cancer patients with travel, lodging, and emotional support. They also
offer a 24-hour support line for both English- and Spanish-speaking cancer
National Cancer Institute (NCI)
Bethesda, MD 20892
A division of the US National Institutes of Health, the NCI has an enormous
web site, numerous statements, booklets, and books about cancer treatment
and care, and a hotline to help cancer patients with a variety of issues
such as physician referrals. To learn of the newest treatments available,
call (800) 4-CANCER and ask for the PDQ (Physicians Data Query) summary for
prostate cancer. These free statements explain the disease,
state-of-the-art treatments, and ongoing clinical trials. There are two
versions available: one for patients that uses simple language and contains
no statistics and one for professionals that is technical, thorough, and
includes citations to the scientific literature. The PDQ can also be found
on the Internet at http://cancernet.nci.nih.gov/pdq.html.
Prostate cancer Internet support
Internet support groups (listservs or chat rooms) are free email or chat
room discussions on specific topics of interest. Email subscribers receive
copies of emails sent by any members of the group to the listserv. Some
active groups generate dozens of messages a day. If you subscribe to the
"digest" mode, you will receive one email containing all of the messages
posted that day. Email discussion groups are an excellent way to connect
with people in similar circumstances. Chat rooms can be either "live" chats
or bulletin board-type chats. A live chat is similar to walking into a room
where a discussion is already taking place except you will be typing your
messages. In a bulletin board-type chat room, a participant may post a
message, and others will usually respond right below that message. With any
of these support groups, you may elect to participate or just observe by
reading the messages of others and the responses that their messages
ACOR (Association of Cancer Online Resources) hosts dozens of cancer
email discussion groups. ACOR offers a handy automatic subscription feature
for discussion mailing lists at www.acor.org. Click on mailing lists (on the left
nav bar); then click on the group you are interested in joining. Discussion
groups hosted by ACOR include PROSTATE--a discussion list for patients,
family, friends, researchers, and physicians to discuss clinical and
non-clinical issues about prostatitis, BPH, and prostate cancer. ACOR also
hosts discussion groups on CANCER-FERTILITY, CANCER-FATIGUE, CANCER-PAIN,
CANCER-SEXUALITY, and dozens of other topics.
Prostate cancer mailing lists not served by ACOR's computer include:
To subscribe to one of these mailing lists:
To subscribe to the National Prostate Cancer Coalition (NPCC)
Address an email note to
Leave the subject line blank.
Type the following as your message: SUBSCRIBE (NAME OF LIST). For example,
to subscribe to CIRCLE, you would type SUBSCRIBE CIRCLE
Within a few minutes, you should receive a confirmation message from the
host computer. Follow the instructions to activate your subscription.
OncoLink, at the University of Pennsylvania, has an online FAQ
(document answering frequently asked questions) about cancer listservs at
you would like to learn a bit more about them and get answers to some
specific questions, this is a good place to start.
Address an email note to
Leave subject line blank.
Type the following as your message: SUBSCRIBE NPCC
Prostate cancer reading and reference
The ABC's of Advanced Prostate Cancer by Mark A. Moyad, MPH, and
Kenneth J. Pienta, MD. Sleeping Bear Press, 2000.
The Complete Prostate Book: Everyman's Guide by Lee Belshin. Prima
Man to Man: Surviving Prostate Cancer by Michael Korda, MD. Random
Men, Women, and Prostate Cancer: A Medical and Psychological Guide for
Women and the Men They Love by Barbara Rubin Wainrib and others. New
Harbinger Publications, 2000.
The Prostate: A Guide for Men and the Women Who Love Them by Patrick
C. Walsh, MD, and Janet Farrar Worthington. Mass Market Paperback, 1997.
Prostate & Cancer: A Family Guide to Diagnosis, Treatment & Survival
by Sheldon Marks, MD. Fisher Books, 2000.
The Prostate Cancer Answer Book: An Unbiased Guide to Treatment
Choices by Marion Morra, Eve Potts, and Vincent DeVita, MD. Avon Books,
Prostate Cancer: A Survivor's Guide by Don Kaltenbach with Tim
Richards. Seneca House Press, 1994.
Prostate Cancer, Revised Edition, by David Bostwick, MD, Gregory
MacLennan, MD, and Thayne R. Larson, MD. Villard Books, 1999.
Prostate Cancer. VHS, 30 minutes. Time/Life Medical. Basic overview
of prostate cancer and its treatment. Contains a booklet that includes a
summary of key points, glossary of terms, a resource guide, and a personal
Take Charge: For Men Newly Diagnosed with Prostate Cancer. VHS, 30
minutes. State of the Art, Inc. (888) 275-2605). This video, narrated by
General Colin Powell, helps men newly diagnosed with prostate cancer.
Package includes a booklet that includes treatment options, a glossary of
medical terms, and a resource list.
General cancer reading and reference
The Cancer Dictionary, Second Edition, by Robert Altman and Michael
Sarg. Checkmark Books, 1999.
A Cancer Survivor's Almanac: Charting Your Journey, edited by
Barbara Hoffman, JD.
John Wiley & Sons, 1998.
Everyone's Guide to Cancer Therapy, Third Edition, edited by Malin
Dollinger, MD. Andrews McMeel Publishing, 1998.
Informed Decisions: The Complete Book of Cancer Diagnosis, Treatment,
and Recovery by Gerald P. Murphy, Lois B. Morris, and Dianne Lange.
Choices in Healing: Integrating the Best of Conventional and
Complementary Approaches to Cancer by Michael Lerner. The MIT Press,
When a Parent Has Cancer: A Guide to Caring for Your Children by
Wendy Schlessel Harpham. HarperCollins, 1997.
The Chemotherapy and Radiation Therapy Survival Guide by Judith
McKay and Nancee Hirano. New Harbinger Publications, 1998.
Sexuality and Fertility After Cancer by Leslie R. Schover. John
Wiley & Sons, Inc., 1997.
When Life Becomes Precious by Elise Needell Babcock. Bantam Books,
Working with Your
Doctor by Nancy Keene. O'Reilly & Associates, Inc., 1998.
Steve Dunn, a cancer survivor, clearly explains cancer types and staging,
chemotherapy, pathology reports, and the pros and cons of researching your
own cancer. He also recommends books and includes inspirational patient
stories. He has links to many of the best cancer sites on the Internet.
An NCI sponsored comprehensive source of cancer information including types
of cancer, treatment options, clinical trials, genetics, coping, support,
resources, and cancer literature. CancerNet is one of the most
comprehensive information sources for cancer patients on the Internet.
CanSearch: Online Guide to Cancer Resources
Service of the National Coalition for Cancer Survivorship that leads you
step-by-step through an online search.
A consumer-friendly database sponsored by the National Institutes of Health
that provides information on more than 4,000 federal and private medical
studies involving patients at more than 47,000 locations nationwide.
The National Library of Medicine's free search service provides access to
the 9 million citations in MEDLINE (with links to participating online
journals) and other related databases. It also includes FAQs, news, and
OncoLink was founded in 1994 by University of Pennsylvania cancer
specialists to help cancer patients, families, healthcare professionals and
the general public get accurate cancer-related information at no charge. It
contains general information, symptom management, psychosocial support and
personal experiences, overviews of different types of cancer, answers to
frequently asked questions, treatment options, and current news.
Patient to Physician (p2p)
Oncologists' answers to selected questions from prostate-cancer patients.
Prostate Cancer InfoLink
Award winning site on prostate cancer that includes the "Ask Arthur"
feature and the "Prostate Dictionary."
Contains a wealth of information on prostate cancer.
American Foundation for Urologic Disease
Free air services
Air Care Alliance
ACA is a nationwide association of humanitarian flying organizations.
Founded in 1990, ACA members have safely flown 24,000 patients to and from
Corporate Angel Network, Inc. (CAN)
Westchester County Airport, Building 1
White Plains, NY 10604
A nationwide nonprofit program designed to give patients with cancer the
use of available seats on corporate aircraft to get to and from recognized
cancer treatment centers. Patients must be able to walk and travel without
life-support systems or medical attention. There are no cost or financial
Companies that will do medical information
searches for a fee:
The Health Resource, Inc.
Planetree Health Resource Center
Schine On-Line Services
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