a well-known advocate and writer, is the parent of a 20-year survivor of
childhood cancer. Nancy has written several books about childhood cancer
including Childhood Leukemia: A Guide for
Families, Friends & Caregivers (now in its fourth edition); Childhood Cancer: A Parent's Guide to Solid Tumor
Cancers (now in its second edition); Chemo,
Craziness & Comfort; Working with Your Doctor; and Your Child in the Hospital (now in its second
edition and translated into Spanish). She has edited many books, including Educating the Child with Cancer and Childhood Brain and Spinal Cord Tumors.
spends considerable time talking in person, on the telephone, and online with
parents of children with cancer and survivors. She was the first chair of the
Children's Cancer Group Patient Advocacy Committee, and then the first chair of
the Children's Oncology Group's (consortium of approximately 230 institutions
that care for children with cancer) Patient Advocacy Committee. She is one of
the original members of the online support groups sponsored by the Association
of Online Cancer Resources (www.acor.org)
that provide resources and emotional support to families and survivors.
lives in Washington State and works to keep the pediatric oncology books in
print through the nonprofit Childhood Cancer Guides (www.childhoodcancerguides.org).
"This book, used by LLS chapters across the country, contains clear, concise, and easy-to-understand information, and has a comprehensive index and a lengthy list of helpful resources. Woven throughout the text are true stories--practical, poignant, moving, funny--from more than 100 survivors and parents. The book also contains a cancer survivor's treatment record."
--Editor, Hermatologic Cancer News, Leukemia and Lymphoma Society
"A valuable addition to any consumer health library collection. Written by Nancy Keene, Wendy Hobbie and Kathy Ruccione, child cancer experts, this new edition is well-defined by its title. Intertwined with practical information and explained in laypersons terms are inspirational stories from over 100 childhood cancer survivors and their parents."
--Editor, Medical Library Association Newsletter, Nursing and Allied Health Resources Section
"Patients and their family members will find this to be an essential resource for dealing with the complexities of health care and cancer survivorship. Overall, this is a well-written and easy to read resource for patients and is highly recommended for all public and consumer health libraries."
--Editor, Consumer Connection Newsletter, Medical Library Association
"Childhood Cancer Survivors is among eight books sent to LLS chapters this summer for patient services managers and other chapter staff to use for their own reference or to recommend or loan to patients and caregivers."
--Editor, eNewsLine, Leukemia and Lymphoma Society
"This book is a practical guide to help survivors and their families do just that thank you to Nancy, Wendy, and Kathy for providing this valuable resource!"
--Liz Scott, Alexs Lemonade Stand Foundation
"An essential book for childhood cancer survivors, their parents, and the health care providers who treat them."
--Margaret Henderson, Library Journal