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Information Technology for Patient Empowerment in Healthcare by David Bates, Ronen Rozenblum, Maria Adela Grando, Eyal Zimlichman, Jim Warren, Marina Velikova, Maarten van der Heijden, Hanna Suominen, Roy Schoenberg, Yukari Schneider, Jane Sarasohn-Kahn, Michael Poku, Margaret Piscitelli, Christopher Pentoney, Disty Pearson, Jihad Obeid, Martha Minniti, Paula Miller, Marjorie Miller, Michael L. Millenson, Mary McNamara, Ariane Marelli, Peter Lucas, Gondy Leroy, Gene Lazuta, David Lansky, Jeff Harwell, C. Martin Harris, Stephanie Glier, Yaorong Ge, Robert Farrell, Mary Jo Deering, Catalina Danis, Scott Cashon, John Jeffrey Carr, Asaf Bitton, Cynthia Baur, Sasha Ballen, Marion J. Ball, Wajeeh Bajwa, Mehnaz Adnan, Thomas Lee

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Yukari Schneider, Maria Adela Grando, Jihad S. Obeid and Wajeeh Bajwa

12 Electronic media for engaging patients in the research consent decision process

Abstract: Informed consent has long been one of the central ethical tenets in human subjects’ research, and it remains a complex challenge for investigators and regulatory authorities today. Those difficulties include meeting the ethical principles outlined in the Belmont Report (respect for persons, beneficence and justice) while simultaneously creating an effective consent process that is informative, non-coercive and comprehensible to every potential research subject. Given rapid technological advances and the omnipresent internet in today’s world, the use of electronic mechanisms to obtain ...

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