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Medical Information Systems Ethics

Book Description

The exponential digitization of medical data has led to a transformation of the practice of medicine. This change notably raises a new complexity of issues surrounding health IT. The proper use of these communication tools, such as telemedicine, e-health, m-health the big medical data, should improve the quality of monitoring and care of patients for an information system to "human face".

Faced with these challenges, the author analyses in an ethical angle the patient-physician relationship, sharing, transmission and storage of medical information, setting pins to an ethic for the digitization of medical information. Drawing on good practice recommendations closely associated with values, this model is developing tools for reflection and present the keys to understanding the decision-making issues that reflect both the technological constraints and the complex nature of human reality in medicine .

Table of Contents

  1. Cover
  2. Title
  3. Copyright
  4. Introduction
    1. I.1. Questions on which our study is based
    2. I.2. Objectives and contributions of this book
    3. I.3. Toward medical ethics
  5. 1: The Emergence of Medical Information in the Face of Personal and Societal Ethical Challenges
    1. 1.1. An information-consuming society
    2. 1.2. e-Health, m-health, the Quantified Self and Big Data
    3. 1.3. Medical secrecy in the face of the computerization of healthcare data
    4. 1.4. Cultural evolution of mentalities surrounding legitimacy of information
    5. 1.5. Processing of personal data in law
  6. 2: Ethical Modeling: From the Design to the Use of an Information System
    1. 2.1. Info-ethics: data on practical wisdom
    2. 2.2. Identification of method used to develop the ethical analysis model
    3. 2.3. Development of the ethical analysis space
    4. 2.4. Presentation of the ethical model
  7. 3: Uses of This Ethical Model
    1. 3.1. Implementing the ethical model
    2. 3.2. Presentation of the study’s questionnaires
    3. 3.3. Necessary environmental changes for healthcare information systems: recommendations and actions
    4. 3.4. Creating an ethical charter on the “ideal” computational tool for a healthcare establishment
  8. 4: Ethics-Oriented Personalized Medicine
    1. 4.1. The evolution of society toward an ethical ideal based on information
    2. 4.2. The doctor–patient–IS triangulation
    3. 4.3. Ethical use of an information system in healthcare
    4. 4.4. Ethics-oriented personalized medicine
    5. 4.5. Tool for the establishment and constant improvement of information systems for ethical practice in hospitals
  9. Conclusions
  10. Appendix 1: Classification of the Justifications in terms of the Different Real-world Environmental Parameters and Fundamental Ethical Principles pertaining to the Major Objectives of an IS in Healthcare
  11. Appendix 2: Questionnaire 1: Designed to Analyze the Perception of Actors in Oncology about the Primary Objectives of an IS in Healthcare
  12. Appendix 3: Questionnaire 1′: Designed to Analyze Healthcare Users’ Perceptions of the Main Objectives of an IS in Healthcare
  13. Appendix 4: Questionnaire 2: Designed to Study the Realization and Characteristics of the IS Tool, to be used by the Designer of the IS and to the “Internal” Users
  14. Appendix 5: Questionnaire 3: Designed to Analyze the Methods and Tools Put in Place to Enable the IS to Work
  15. Appendix 6: Environmental Parameters of the Knowledge Pyramid
  16. Bibliography
  17. Index
  18. End User License Agreement