CHAPTER

16

MAPPING THE JOURNEY

I ONCE HAD A CHEAP PRINT hanging in my office that said, ‘‘Life Is a Journey, Not a Destination.’’ As with any journey, there are detours along the way. Plans have to be changed. It is impossible to plan for every circumstance.

As stated earlier, when Billy Ray was a toddler, we pressed the pediatrician to predict what level he would function at as an adult. We had to make a choice between therapy that wasn’t covered by insurance and the payments we were making on life insurance to fund a trust we had created for him. Given the way he was blooming developmentally, we agreed with the doctor that he would likely be able to function in some kind of semi-independent living program.

The transition plan I created for ...

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