21
APPENDIX
2–3
National Health Organizations
800 Cocaine
Tollfree:1-800-262-2463
http://800cocaine.com
Academy of Orton-Gillingham Practitioners
and Educators (formerly Orton Dyslexia Society)
Phone:845-373-8919
Tollfree:1-800-222-3123
Fax:845-373-8925
E-mail:ortonacademy@verizon.net
http://www.ortonacademy.org
Al-Anon Family Group Headquarters Inc.
Phone:757-563-1600
Fax:757-563-1655
http://www.al-anon.org
ALS Association
Tollfree:1-800-782-4747
http://www.alsa.org
Alzheimer’s Association
Tollfree:1-800-272-3900
http://www.alz.org
Alzheimer’s Disease Education and Referral Center
Tollfree:1-800-438-4380
http://www.nia.nih.gov/alzheimers
AMC Cancer Fund
Phone:303-233-6501
Tollfree:1-800-525-3777
E-mail:contactus@amc.org
http://www.amc.org
American Association of Kidney Patients
Tollfree:1-800-749-2257
Fax:813-636-8122
E-mail:info@aakp.org
http://www.aakp.org
American Burn Association
Phone:312-642-9260
Fax:312-642-9130
E-mail:info@ameriburn.org
http://www.ameriburn.org
American Cancer Society
Tollfree:1-800-ACS-2345
http://www.cancer.org
American Childhood Cancer Organization
Tollfree:1-800-366-2223
Fax:301-962-3521
E-mail:staff@candlelighters.org
http://www.candlelighters.org
American Council of the Blind
Tollfree:1-800-424-8666
http://www.acb.org
American Council on Alcoholism and Treatment
Tollfree:1-800-527-5344
E-mail:info@aca-usa.org
http://www.aca-usa.org
American Diabetes Association
Tollfree:1-800-342-2383
http://www.diabetes.org
American Foundation for the Blind
Phone:212-502-7600
Tollfree:1-800-232-5463
Fax:1-888-545-8331
E-mail:afbinfo@afb.net
http://www.afb.org
American Heart Association
Tollfree:1-800-242-8721
http://www.americanheart.org
22 PART I: PATIENT EDUCATION
American Institute for Cancer Research
Tollfree:1-800-843-8114
Fax:202-328-7226
E-mail:aicrweb@aicr.org
http://www.aicr.org
American Kidney Fund
Tollfree:1-800-638-8299
E-mail:helpline@kidneyfund.org
http://www.kidneyfund.org
American Liver Foundation
Phone:212-668-1000
Tollfree:1-800-223-0179
Fax:212-483-8179
http://www.liverfoundation.org
American Lung Association
Phone:202-785-3355
Tollfree:1-800-LUNG-USA
Fax:202-452-1805
E-mail:info@lungusa.org
http://www.lungusa.org
American Parkinson Disease Association
Phone:718-981-8001
Tollfree:1-800-223-APDA
Fax:718-981-4399
E-Mail:apda@apdaparkinson.org
http://www.apdaparkinson.org
American Social Health Association
(formerly National STD Hot Line)
Phone:919-361-8400
Tollfree:1-800-227-8922
Fax:919-361-8425
https://www.ashastd.org
American Speech–Language–Hearing Association
Tollfree:1-800-638-TALK
Fax:301-296-8580
E-mail:actioncenter@asha.org
http://www.asha.org
American Stroke Association (a division
of the American Heart Association;
formerly Stroke Connection)
Tollfree:1-800-553-6321
Tollfree:1-888-478-7653
http://www.strokeassociation.org
Arthritis Consulting Services
Phone:954-739-3202
Tollfree:1-800-327-3027
Fax:954-671-1282
http://www.stoparthritis.com
Arthritis Foundation
Tollfree:1-800-283-7800
http://www.arthritis.org
Asthma and Allergy Foundation of America
Tollfree:1-800-7-ASTHMA
E-mail:info@aafa.org
http://www.aafa.org
Back Pain Hotline
Tollfree:1-800-247-2225
http://www.backpain-hotline.com
Better Hearing Institute
Phone:202-449-1100
Tollfree:1-800-327-9355
Fax:202-216-9646
E-mail:mail@betterhearing.org
http://www.betterhearing.org
Blind Childrens Center
Phone:323-664-2153
Fax:323-665-3828
http://www.blindchildrenscenter.org
Blinded Veterans Association
Phone:202-371-8880
Tollfree:1-800-669-7079
Fax:202-371-8258
E-mail:bva@bva.org
http://www.bva.org
Brain Injury Association of America (formerly National
Head Injury Foundation)
Phone:703-761-0750
Tollfree:1-800-444-NHIF
Fax:703-761-0755
http://www.biausa.org
Center for Assistive Technology and Environmental
Access (formerly Center for Rehabilitation
Technology)
Phone:404-894-4960
Tollfree:1-800-726-9119
Fax:404-894-9320
E-mail:catea@coa.gatech.edu
http://www.catea.gatech.edu
Children’s Craniofacial Association (formerly
Children’s Craniofacial International Foundation)
Phone:214-570-9099
Tollfree:1-800-535-3643
Fax:214-570-8811
E-mail:contactCCA@ccakids.com
http://www.ccakids.com
Children’s Hospice International
Tollfree:1-800-242-4453
E-mail:info@chionline.org
http://www.chionline.org
Appendix 2–3: National Health Organizations 23
Children’s Tumor Foundation
(formerly Neurofibromatosis Foundation)
Phone:212-344-6633
Tollfree:1-800-323-7938
Fax:212-747-0004
E-mail:info@ctf.org
http://www.ctf.org
Christopher & Dana Reeve Foundation
(formerly American Paralysis Association)
Tollfree:1-800-225-0292
http://www.christopherreeve.org
Cleft Palate Foundation
Phone:919-933-9044
Tollfree:1-800-242-5338
Fax:919-933-9604
http://www.cleftline.org
Cooley’s Anemia Foundation Inc.
Tollfree:1-800-522-7222
Fax:212-279-5999
E-mail:info@cooleysanemia.org
http://www.thalassemia.org
Cornelia de Lange Syndrome Foundation
Phone:860-676-8166
Tollfree:1-800-753-2357
Fax:860-676-8337
E-mail:info@cdlsusa.org
http://www.cdlsusa.org
Crohn’s and Colitis Foundation of America (formerly
National Foundation for Ileitis and Colitis)
Tollfree:1-800-343-3637
E-mail:info@ccfa.org
http://www.ccfa.org
Cystic Fibrosis Foundation
Phone:301-951-4422
Tollfree:1-800-FIGHT-CF
Fax:301-951-6378
http://www.cff.org
Deaf Education (Educational Enhancement
for the Field of Deaf Education)
Phone:803-576-9303
Tollfree:1-800-237-6213
TTY:803-576-9175
Fax:803-576-9228
http://www.deafed.net
Deafness Research Foundation
Tollfree:1-800-535-3323
http://www.drf.org
Depression and Bipolar Support Alliance
(formerly National Depressive and Manic
Depressive Association)
Tollfree:1-800-826-3632
Fax:312-642-7243
http://www.dbsalliance.org
Ear Foundation
Phone:615-329-7809
Tollfree:1-800-545-4327
Fax:615-329-7935
www.earfoundation.org
Easter Seals
Phone:312-726-6200
Tollfree:1-800-221-6827
Fax:312-726-1494
http://www.easterseals.com
Endometriosis Association
Phone:414-355-2200
Tollfree:1-800-992-3636
Fax:414-355-6065
http://www.endometriosisassn.org
Epilepsy Foundation of America
Tollfree:1-800-332-1000
E-mail:info@efa.org
https://www.epilepsyfoundation.org
Epilepsy Network (formerly Epilepsy Information
Service)
Phone:831-475-9110
Tollfree:1-800-642-0500
E-mail:info@epilepsynetwork.org
http://www.epilepsynetwork.org
EyeCare America (formerly National Eye Care Project)
Phone:877-887-6327
Tollfree:1-800-222-3937
Fax:415-561-8567
http://www.eyecareamerica.org
First Candle
Tollfree:1-800-221-SIDS
E-mail:info@rstcandle.org
http://www.rstcandle.org
Foundation Fighting Blindness (formerly National
Retinitis Pigmentosa Foundation)
Phone:410-568-0150
Tollfree:1-800-683-5555
E-mail:info@FightBlindness.org
https://www.blindness.org
24 PART I: PATIENT EDUCATION
Guide Dog Foundation for the Blind
Phone:631-930-9000
Tollfree:1-800-548-4337
Fax:631-930-9009
http://www.guidedog.org
Healthy Mothers, Healthy Babies Coalition
Phone:703-837-4792
Fax:703-684-5968
E-mail:info@hmhb.org
http://www.hmhb.org
Hearing Information Center
Tollfree:1-800-622-3277
Huntington’s Disease Society of America
Phone:212-242-1968
Tollfree:1-800-345-HDSA
Fax:212-239-3430
E-mail:hdsainfo@hdsa.org
http://www.hdsa.org
Impotence Information Center
Tollfree:1-800-843-4315
Fax:952-930-6373
International Foundation for Research and
Education on Depression (iFred)
Tollfree:1-800-442-4673
http://www.ifred.org
International Hearing Society
Phone:734-522-7200
Tollfree:1-800-521-5247
Fax:734-522-0200
http://ihsinfo.org
Juvenile Diabetes Research Foundation International
Tollfree:1-800-533-CURE(2873)
Fax:212-785-9595
E-mail:info@jdrf.org
http://www.jdf.org
Kansas Department on Aging
Tollfree:1-800-621-0379
http://www.agingkansas.org
Lighthouse International (formerly National Center
for Vision and Aging)
Phone:212-821-9200
Tollfree:1-800-334-5497
Tollfree:1-800-829-0500
Fax:212-821-9707
E-mail:info@lighthouse.org
http://www.lighthouse.org
Lung Line (National Jewish Health)
Tollfree:1-800-222-LUNG
E-mail:lungline@njhealth.org
http://www.nationaljewish.org/about/contact/lung-line
.aspx
Lupus Foundation of America
Phone:202-349-1155
Tollfree:1-800-558-0121
Fax:202-349-1156
http://www.lupus.org
Mental Health America (formerly National Mental
Health Association)
Tollfree:1-800-969-6642
http://www.mhacv.org(CentralVirginia)
http://www.mhala.org(LosAngeles,California)
Myasthenia Gravis Foundation of America Inc.
Phone:212-297-2156
Tollfree:1-800-541-5454
Fax:212-370-9047
http://www.myasthenia.org
National Alliance on Mental Illness
Phone:703-524-7600
Tollfree:1-800-950-NAMI
MemberServices:1-888-999-NAMI(6264)
Fax:703-524-9094
http://www.nami.org
National Autism Hotline
Phone:304-525-8014
Fax:304-525-8026
National Center for Stuttering
Tollfree:1-800-221-2483
http://www.stuttering.com
National Council on Alcohol
and Drug Dependence Inc.
Phone:212-269-7797
Tollfree:1-800-NCA-CALL
Fax:212-269-7510
E-mail:national@ncadd.org
http://www.ncadd.org
National Council on Child Abuse
and Family Violence
Phone:202-429-6695
Fax:202-521-3479
E-mail:info@nccafv.org
http://www.nccafv.org
Appendix 2–3: National Health Organizations 25
National Down Syndrome Congress
Phone:770-604-9500
Tollfree:1-800-232-NDSC
Fax:770-604-9898
E-mail:info@ndsccenter.org
http://www.ndsccenter.org
National Down Syndrome Society
Tollfree:1-800-221-4602
E-mail:info@ndss.org
http://www.ndss.org
National Drug Information Treatment
and Referral Hotline (formerly National Drug
Information and Referral Line)
Tollfree:1-800-662-HELP
National Epilepsy Library
Tollfree:1-800-EFA-4050
Fax:301-459-3700
E-mail:efanel@capcon.net
https://www.epilepsyfoundation.org
National Foundation for Facial Reconstruction
Phone:212-263-6656
Fax:212-263-7534
http://www.nffr.org
National Federation of the Blind
Tollfree:1-800-638-7518
http://www.nfb.org
National Headache Foundation
Phone:312-274-2650
Tollfree:1-888-643-5552
E-mail:info@headaches.org
http://www.headaches.org
National Hemophilia Foundation
Phone:212-328-3700
Tollfree:1-800-42-HANDI
Fax:212-328-3777
E-mail:handi@hemophilia.org
http://www.hemophilia.org
National Hospice and Palliative Care Organization
Phone:703-837-1500
Tollfree:1-800-658-8898
Fax:703-837-1233
E-mail:nhpco_info@nhpco.org
http://www.nhpco.org
National Information Clearinghouse Infants
With Disabilities and Life-Threatening Conditions
Tollfree:1-800-922-9234
National Kidney Foundation
Phone:212-889-2210
Tollfree:1-800-622-9010
Fax:212-689-9261
http://www.kidney.org
National Lymphedema Network
Phone:415-908-3681
Tollfree:1-800-541-3259
Fax:415-908-3813
E-mail:nln@lymphnet.org
http://www.lymphnet.org
National Multiple Sclerosis Society
Tollfree:1-800-344-4867
http://www.nationalmssociety.org
National Organization for Rare Disorders
Phone:203-744-0100
Tollfree:1-800-999-6673
Fax:203-798-2291
E-mail:RN@rarediseases.org
http://rarediseases.org
National Osteoporosis Foundation
Phone:202-223-2226
Tollfree:1-800-223-9994
Tollfree:1-800-231-4222
http://www.nof.org
National Parkinson Foundation
Phone:305-243-6666
Tollfree:1-800-327-4545
Fax:305-243-6073
E-mail:contact@parkinson.org
http://www.parkinson.org
National Rehabilitation Information Center
Phone:301-459-5900
Tollfree:1-800-346-2742
E-mail:naricinfo@heitechservices.com
http://www.naric.com
National Reye’s Syndrome Foundation
Tollfree:1-800-233-7393
E-mail:nrsf@reyessyndrome.org
http://www.reyessyndrome.org
National Spinal Cord Injury Association
Tollfree:1-800-962-9629
E-mail:info@spinalcord.org
http://www.spinalcord.org
National Stroke Association
Tollfree:1-800-787-6537
http://www.stroke.org

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