The following excerpt is taken from Appendix C of Childhood
Leukemia: A Guide for Families, Friends, and Caregivers, 3nd
Edition by Nancy Keene, copyright 2002 by O'Reilly &
Associates, Inc. For book orders/information, call (800) 998-9938.
Permission is granted to print and distribute this excerpt for
noncommercial use as long as the above source is included.
The information in this article is meant to educate and should
not be used as an alternative for professional medical care.
Candlelighters Childhood Cancer Foundation
P. O. Box 498
Kensington, MD 20895-0498
(800) 366-2223 (CCCF)
Founded in 1970, Candlelighters has more than 40,000 members
worldwide. Some of the free services provided by Candlelighters
are a toll-free information hotline, a quarterly newsletter,
various handbooks to help families of children with cancer, local
support group chapters, and national advocacy.
Candlelighters Childhood Cancer Foundation Canada
55 Eglinton Avenue East, Suite 401
Toronto, ON Canada M4P 1G8
(800) 363-1062 (Canada only)
(416) 489-6440 (callers from outside Canada)
Provides some of the same services as US Candlelighters.
American Cancer Society
1599 Clifton Road NE
Atlanta, GA 30329-4251
Has a national network of employees and volunteers who implement
research, education, and patient service programs. Although
programs differ according to state, some widely available
programs are patient-to-patient visitation, transportation to
appointments, housing near treatment centers, equipment and
supplies, support groups, literature on a large variety of
topics, summer camps for children with cancer, and research and
Canadian Cancer Society
565 W. 10th Avenue
Vancouver, BC Canada V5Z 4J4
(888) 939-3333 or (604) 872-4400
Provides some of same services as the US Cancer Society.
Childhood Cancer Ombudsman Program
P.O. Box 595
Burgess, VA 22432
Fax: (804) 580-2502
This free service helps children with cancer and their families
who are having difficulty gaining access to appropriate
education, medical care, healthcare cost coverage, and/or
meaningful employment. Services include medical library searches,
a second opinion program, and help resolving problems with
insurance or discrimination.
Leukemia & Lymphoma Society
1311 Mamaroneck Avenue
White Plains, NY 10605
(914) 949-5213 or (800) 955-4572 (4LSA)
This organization provides financial assistance to families (up
to $500/year for outpatients), funds research, sponsors a
national program in education for the public and the medical
community, and publishes a large number of booklets on
The Academy for Guided Imagery
P.O. Box 2070
Mill Valley, CA 94942
This organization trains health professionals to use interactive
guided imagery with their patients and clients. Self care books
and tapes on guided imagery are available for sale. They can
assist with locating a professional in your area to help your
child learn visualization.
The American Society of Clinical Hypnosis
130 East Elm Court, Suite 201
Roselle, IL 60172-2000
A membership organization for doctors, psychologists, and
dentists who use hypnosis in their practices. For referral to a
local member, send request with a self-addressed stamped
The Disability Rights Education and Defense Fund
2212 Sixth Street
Berkeley, CA 94710
Answers questions about the Americans with Disabilities Act,
explains how to file a complaint, and provides dispute
Job Accommodation Network (JAN)
P.O. Box 6080
Morgantown, WV 26506-6080
(800) 526-7234 or (800) 232-9675 (800-ADA-WORK)
An international consulting service that provides free
information about how employers can accommodate people with
disabilities., Also provides information on the Americans with
Disabilities Act (ADA) and on how people with disabilities can
start their own small businesses.
Learning Disabilies Associaton of America
4156 Library Rd.
Pittsburgh PA 15234
Organization of parents, professionals, and individuals with
learning disabilies. Has local chapters and provides educational
National Cancer Institute (NCI)
Cancer Information Service
NCI Public Inquiries Office
Bethesda, MD 20892
(800) 422-6237 (800-4-CANCER)
CANCERFAX: (301) 402-5874
Provides a nationwide telephone service for people with cancer,
their families and friends, and the professionals who treat them.
The NCI answers questions and sends out informational booklets on
a variety of cancer-related topics. CANCERFAX provides treatment
guidelines, with current data on prognosis, staging, and
histologic classifications. To use CANCERFAX, you need a fax
machine with a telephone set to touch-tone dialing. A recording
will give you instructions.
Foundation for the Children's Oncology Group (formerly National
Childhood Cancer Foundation)
440 E. Huntington Drive
P.O. Box 60012
Arcadia, CA 91066-6012
Supports pediatric cancer treatment and research at over 235
hospitals in North America. Their free newsletter, Childhood
Cancerline, provides information on new treatments and
National Coalition for Cancer Survivorship
1010 Wayne Avenue, Suite 770
Silver Spring, MD 20910
(301) 650-9127 or (877) 622-7937 (877-NCCS-YES)
An organization that addresses the needs of long-term cancer
survivors and advocates for change in healthcare to maximize
survivor's access to optimal treatment and support. Extensive
National Information Center for Children and Youth with
P.O. Box 1492
Washington, DC 20013-1492
(800) 695-0285 or (202) 884-8200
A clearinghouse that provides pamphlets and information on
disabilities and the rights of disabled children and their
PDQ (Physician Data Query)
(800) 422-6237 (800-4-CANCER)
PDQ is the National Cancer Institute's computerized listing of
accurate and up-to-date information for patients and health
professionals about cancer treatments, research studies, and
11835 West Olympic Boulevard., Suite 500
Los Angeles, CA 90064
STARBRIGHT is a nonprofit organization that creates and
distributes programs for seriously ill children including
STARBRIGHT Videos with Attitude, a video series for teens about
communicating with healthcare professionals, returning to school,
and coping with frequent and prolonged hospitalization.
Cancer Care, Inc.
275 Seventh Avenue
New York, NY 10001
(800) 813-4673 (HOPE) or (212) 712-8080
A national, nonprofit organization that provides referrals,
one-on-one counseling, specialized support groups, and
Cancer Cured Kids
P.O. Box 189
Old Westbury, NY 11568
An organization dedicated to the quality of life of kids who have
survived cancer. Supplies information about educational and
Center for Attitudinal Healing
33 Buchanan Drive
Sausalito, CA 94965
A nonprofit, nonsectarian group that sponsors local and national
workshops for children with catastrophic or life-threatening
diseases and their siblings. The center uses music and art in a
supportive program to help children ages 6 to 16 share their
feelings about their situation. They have also published several
Chai Lifeline/Camp Simcha
151 West 30th Street
New York, NY 10001
(212) 465-1300 or (877) 388-7462
A national, nonprofit Jewish organization that provides support
service programs to children and their families in crisis,
including medical referrals, support groups, visits to
hospitalized and housebound children, financial aid,
transportation, a kosher camp for kids with cancer, and more.
Child Life Council
11820 Parklawn Drive, Suite 202
Rockville, MD 20852
Promotes the well-being of children and families in healthcare
settings by supporting the development and practice of the child
life profession with training conferences, publications, and
Children's Hopes and Dreams Foundation
280 Route 46
Dover, NJ 07801
This organization operates a free, worldwide pen-pal program for
children (ages 5 to 17) with disabilities, chronic illnesses, or
P.O. Box 682268
Franklin, TN 37068
Fax: (615) 794-0179
A bimonthly publication for people whose lives have been touched
National Children's Cancer Society
1015 Locust Street, Suite 600
St. Louis, MO 63101
(800) 532-6459 (800-5-FAMILY) or (314) 241-1600
Helps children affected by childhood cancer and their families by
providing financial assistance, advocacy, education, and
Songs of Love Foundation
P.O. Box 750809, Department P
Forest Hills, NY 11375
(800) 960-7664 (SONG)
A nonprofit organization with a volunteer group of more than 200
artists who produce personalized musical portraits for children
with chronic or life-threatening diseases.
BMT Infonet provides a list of additional resources for bone
marrow or stem cell transplant families at
Children's Organ Transplant Association
2501 Cota Drive
Bloomington, IN 47403
Provides fundraising help.
National Bone Marrow Transplant Link
20411 W. Twelve Mile Road, Suite 108
Southfield, MI 48076
(800) 546-5268 (800-LINK-BMT) or (248) 358-1886
Provides hot line, peer support, library, clearinghouse, and
suggestions for financial assistance.
National Marrow Donor Program (NMDP)
3001 Broadway Street, NE, Suite 500
Minneapolis, MN 55413
Patient Advocacy: (888) 999-6743; Business Line: (800) 526-7809
The NMDP has the world's largest computerized listing of
potential bone marrow donors-4,500,000 in 2002. The NMDP has
cooperative search arrangements with many other registries
worldwide. They also provide information on transplant centers in
The National Transplant Assistance Fund
3475 West Chester Pike, Suite 230
Newton Square, PA 19073
(800) 642-8399 or (610) 353-9684
Provides fundraising assistance and donor awareness material to
transplant and catastrophic injury patients nationwide.
For a comprehensive list, visit
151 West 30th Street
New York, NY 10001
(877) CHAI LIFE
Kosher camp from the national non profit Jewish organization-Chai
Children's Oncology Camping Association International
C/o Children's Memorial Hosptial
2300 Children's Plaza
Chicago, IL 60614
Umbrella organization of groups that provide camps for children
Pharmaceutical Research and Manufacturers of America
Directory of patient assistance programs
1100 15th St NW
Washington DC 20002
Physican hot line: (800) 762-4636
List companies that provide prescription medicines free of charge
to physicians whose patients might not otherwise have access to
Centers for Medicare & Medicaid Services - Medicare Prescription
Drug Assistance Program
7500 Security Boulevard
Baltimore, MD 21244-1850
Provides information on programs that offer discounts or free
medications to individuals in need.
Resource for patient assistance programs offered by federal,
state, and charitable organizations.
Cancer Fund of America
2901 Breezewood Lane
Knoxville, TN 37921
(800) 578-5284 or (865) 938-5281
Helps defray cancer-related expenses not covered by insurance.
Consumer Credit Counseling Foundation
A national, nonprofit consumer credit counseling agency that
provides 24-hour toll-free credit counseling over the telephone.
Provides help with budgets, payments, and debt collection.
Genus Credit Management
GCM is a nonprofit credit counseling agency that offers free debt
management and educational programs to help financially
The Sparrow Foundation
4192 NW 61st Street
Redmond, OR 97756
(541) 549-1144, ext. 8307
Promotes youth compassion by establishng and supporting Sparrow
Clubs to help local children in medical crises. Provides a grant
for the ill child that local children/schoolmates/friends earn by
doing community service or fund raising.
Patient Advocacy Coalition, Inc.
777 East Girard Avenue, Suite 250
Englewood, CO 80110
Toll-free: (877) 435-7123 (877-HELP-123)
Fax: (303) 744-7876
Helps resolve insurance reimbursement problems.
Patient Advocate Foundation
753 Thimble Shoals Boulevard, Suite B
Newport News, VA 23606
(800) 532-5274 or (757) 873-6668
Provides publications, help with insurance problems, and
referrals to attorneys.
The National Association of Insurance Commissioners (NAIC)
2301 McGee Street, Suite 800
Kansas City, MO 64108-2604
This is an organization of insurance regulators from the 50
States, the District of Columbia, and the four U.S. territories.
The NAIC web site links to each state's insurance regulator.
Insure Kids Now!
(877) 543-7669 (877-KIDS NOW)
The US Department of Health and Human Services began the Insure
Kids Now! Program to link the nation's uninsured children with
free or low-cost health insurance.
50 Fullerton Court, Suite 200
Sacramento, CA 95825
(877)-247-5433 (877-AIRLIFE) or (916) 641-7800
A national nonprofit charitable organization of over 1,500
private pilots who fly ambulatory patients who cannot afford the
cost of travel to medical facilities for diagnosis and treatment.
Air Care Alliance
(888) 260-9707 or (918) 745-0384
A nationwide association of humanitarian flying organizations
that provide flights for healthcare, compassion, and community
Angel Flight America
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
Provides free transportation to medical treatment (travel
distance 1,000 miles or less) for people who cannot afford public
transportation, or who cannot tolerate it for health reasons.
American Airlines - Miles for Kids in Need
P.O. Box 619616
Dallas/Ft. Worth Airport, TX 75261-9616
Provides free travel for ill children and their families. A third
party such as a charitable organization, hospital, or other
tax-exempt organization must submit travel requests.
Continental Airlines - CAREFORCE
Provides free travel for ill children and one accompanying adult.
A third party such as a doctor, social worker, or lawyer must
Corporate Angel Network, Inc. (CAN)
Westchester County Airport, Building 1
White Plains, NY 10604
A nationwide, nonprofit program designed to give patients with
cancer the use of available seats on corporate aircraft to get to
and from recognized cancer treatment centers. Patients must be
able to walk and travel without life-support systems or medical
attention. A child may be accompanied by up to two adults. This
service will also fly donors. There is no cost or financial need
Delta Airlines - SkyWish Program
Helps children and adults with life-threatening illnesses and
injuries travel to get the help they need.
Proctor & Gamble Building
4711 Young Street
North York, ON Canada M2N 6K8
An organization that provides free air transport to Canadians in
financial need who must travel from their own communities to
recognized facilities for medical care.
Mercy Medical Airlift
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
(888) 675-1405 or (757) 318-9175
Dedicated to serving people in situations of compelling human
need through the provision of charitable air transportation.
Miracle Flights for Kids
2756 N. Green Valley Parkway, #115
Green Valley, NV 89014-2120
(800) 359-1711 or (702) 261-0494
An organization that purchases commercial airline tickets,
utilizes private aircraft, and combines resources from individual
donors to provides free transportation to medical treatment
centers all across America.
Northwest Airlines KidCares
Provides air travel to children age 18 and younger who are unable
to receive treatment in their home area.
24-hour hot line: (800) 296-1217
Specialists refer callers to the most appropriate, cost-effective
charitable or commercial services, including volunteer pilot
organizations and special airline transport programs.
In addition to the large organizations listed below, there are
many smaller and local organizations that grant wishes to
seriously ill children.
Children's Wish Foundation International
8615 Roswell Road
Atlanta, GA 30350
US or Europe. Fulfills wishes of terminally ill children.
The Children's Wish Foundation of Canada
95 Bayly Street West, Suite 404
Canada L1S 7K8
Their goal is to provide a once-in-a-lifetime experience for
children ages 3 to 18 with high-risk, life-threatening diseases.
There are chapters throughout Canada. Parents can call for the
location of the chapter nearest to them.
The Dream Factory, Inc.
1218 South Third Street
Louisville, KY 40203
Chapters in 30 states. Grants wishes of children ages 3 to 18 who
are critically or chronically ill.
Make-a-Wish Foundation of America
3350 North Central Avenue, Suite 300
Phoenix, AZ 85012
(602) 279-WISH or (800) 722-WISH
US and international chapters and affiliates. Grants wishes to
children under the age of 18 with life-threatening illnesses.
The Starlight Children's Foundation
5900 Wilshire Boulevard, Suite 2530
Los Angeles, CA 90036
Has chapters in the United States, Canada, Australia, and United
Kingdom. Fulfills wishes for seriously ill children ages 4 to 18.
P.O. Box 255
5400 County Road 547 N
Loughman, FL 33858
No geographic boundaries. Grants wishes to chronically or
terminally ill children ages 3 to 21.
The Centering Corporation
7230 Maple Street
Omaha, NE 68134
Publishes a free catalog that contains an extensive listing of
books, cards, audiotapes, and videotapes on death and grieving.
Children's Hospice International
901 North Pitt Street, Suite 230
Alexandria, VA 22314
(800) 242-4453 (800-24-CHILD) or (703) 684-0330
Fax: (703) 684-0226
Provides resources and referrals for children and families of
children with life- threatening conditions.
The Compassionate Friends National Office
P.O. Box 3696
Oak Brook, IL 60522-3696
(877) 969-0010 or (630) 990-0010
A self-help organization that offers understanding and friendship
to bereaved families through support meetings at local chapters
and telephone support. (They match persons with similar losses.)
Publishes a newsletter for parents and one for siblings.