Lung Cancer Resources
This list includes resources you're likely to use most often and those that are
the richest sources of specific information on lung cancer. All entries in
each category are listed in alphabetical order, not by importance.
Lung cancer organizations
The Alliance for Lung Cancer Advocacy, Support, and Education
1601 Lincoln Avenue
P.O. Box 849
Vancouver, WA 98666
A nonprofit organization dedicated to improving the quality of life of lung
cancer patients. Among its many programs are a national information hot line, a
list of community support groups, and educational materials including a lung
cancer manual (available online or through the mail), resource guide, and
Organizations providing general cancer
American Cancer Society (ACS) National Office
1599 Clifton Road NE
Atlanta, GA 30329-4251
The American Cancer Society has many national and local programs to help cancer
patients with travel, lodging, and emotional support. They also offer a 24-hour
support line for both English- and Spanish-speaking cancer patients.
- National Cancer Institute (NCI)
Bethesda, MD 20892
A division of the US National Institutes of Health, the NCI has an enormous web
site, numerous statements, booklets, and books about cancer treatment and care,
and a hotline to help cancer patients with a variety of issues such as physician
referrals. To learn of the newest treatments available, call (800) 4-CANCER and
ask for the PDQ (Physicians Data Query) summary for lung cancer. These
free statements explain the disease, state-of-the-art treatments, and ongoing
clinical trials. There are two versions available: one for patients that uses
simple language and contains no statistics and one for professionals that is
technical, thorough, and includes citations to the scientific literature. The
PDQ can also be found on the Internet at http://cancernet.nci.nih.gov/pdq.html.
Lung cancer Internet support
Internet support groups (listervs or chat rooms) are free email discussions on
specific topics of interest. Each subscriber receives a copy of an email sent by
any member of the group. Some active groups generate dozens of messages a day.
If you subscribe to the "digest" mode, you will receive one email containing all
of the messages posted that day. Email discussion groups are an excellent way to
connect with people in similar circumstances. Several Internet support groups
discuss issues related to lung cancer.
ACOR (Association of Cancer Online Resources) hosts dozens of cancer
email discussion groups. Groups hosted by ACOR include LUNG-BAC for
bronchoalveolar carcinoma, LUNG-SCLC for small-cell lung cancer; and LUNG-NSCLC
for nonsmall-cell lung cancer. LUNG-ONC provides general support for all three
and for mesothelioma. ACOR hosts dozens of other discussion groups including
CANCER, CANCER-FATIGUE, CANCER-PAIN, and CANCER-PARENTS. ACOR offers a
convenient automatic subscription feature for discussion mailing lists at www.acor.org. Click on
mailing lists (on the left nav bar); then click on the group you are interested
- OncoLink, at the University of Pennsylvania, has an online FAQ
(document answering frequently asked questions) about cancer listservs at http://oncolink.org/resources/faq/listserv.html. If you
would like to learn a bit more about them and get answers to some specific
questions, this is a good place to start.
Books about lung cancer
Living with Lung Cancer: A Guide for Patients and Their Families, Fourth
Edition, by Barbara G. Cox and others. Triad Publishing Co., 1998.
- Lung Cancer: Principles and Practice edited by Harvey I. Pass.
Lippincott Williams & Wilkins Publishers, 2000.
- Lung Cancer edited by Jack A. Roth and others. Blackwell Science
- Myths & Facts about Lung Cancer: What You Need to Know by John C.
Ruckdeschel. P R R, Inc., 1999.
General reading and reference
The Cancer Dictionary, Second Edition, by Robert Altman and Michael Sarg.
Checkmark Books, 1999.
- A Cancer Survivor's Almanac: Charting Your Journey, edited by Barbara
John Wiley & Sons, 1998.
- Everyone's Guide to Cancer Therapy, Third Edition, edited by Malin
Andrews McMeel Publishing, 1998.
- Informed Decisions: The Complete Book of Cancer Diagnosis, Treatment, and
Recovery by Gerald P. Murphy, MD, Lois B. Morris, and Dianne Lange. Viking,
- Choices in Healing: Integrating the Best of Conventional and
Complementary Approaches to Cancer by Michael Lerner. The MIT Press, 1996.
- When a Parent Has Cancer: A Guide to Caring for Your Children by
Wendy Schlessel Harpham. HarperCollins, 1997.
- The Chemotherapy and Radiation Therapy Survival Guide by Judith McKay
and Nancee Hirano. New Harbinger Publications, 1998.
- Sexuality and Fertility after Cancer by Leslie R. Schover. John Wiley
& Sons, Inc., 1997.
- When Life Becomes Precious by Elise Needell Babcock. Bantam Books,
- Working with Your
Doctor by Nancy Keene. O'Reilly & Associates, Inc. 1998
Free Air Services
Steve Dunn, a cancer survivor, clearly explains cancer types and staging,
chemotherapy, pathology reports, and the pros and cons of researching your own
cancer. He recommends books, includes inspirational patient stories, and has
links to many of the best cancer sites on the Internet.
An NCI sponsored comprehensive source of cancer information including types of
cancer, treatment options, clinical trials, genetics, coping, support,
resources, and cancer literature. CancerNet is one of the most comprehensive
information sources for cancer patients on the Internet.
- CanSearch: Online Guide to Cancer Resources
Service of the National Coalition for Cancer Survivorship that leads you
step-by-step through an online search.
- Clinical Trials
A consumer friendly database sponsored by the National Institutes of Health that
provides information on more than 4,000 federal and private medical studies
involving patients at more than 47,000 locations nationwide.
- Lung Cancer Online
This web site, constructed by Karen Parles, a nonsmoking lung cancer survivor,
contains original information and pointers to all of the best sites on the Web
for lung cancer information.
- The National Familial Lung Cancer Registry
The Johns Hopkins Medical Institutions established the registry to help
understand the causes of lung cancer (beyond smoking) and to serve as an
educational resource for persons at risk for lung cancer.
OncoLink was founded in 1994 by University of Pennsylvania cancer specialists to
help cancer patients, families, health care professionals, and the general
public get accurate cancer-related information at no charge. It contains general
information, symptom management, psychosocial support and personal experiences,
overviews of different types of cancer, answers to frequently asked questions,
treatment options, and current news.
The National Library of Medicine's free search service provides access to the 9
million citations in MEDLINE (with links to participating online journals), and
other related databases. Also includes FAQs, news, and clinical alerts.
Companies that will do medical information
searches for a fee:
Air Care Alliance
ACA is a nationwide association of humanitarian flying organizations. Founded in
1990, ACA members have safely flown 24,000 patients to and from medical
- Corporate Angel Network, Inc. (CAN)
Westchester County Airport, Building 1
White Plains, NY 10604
(800) 328-4226 or (914) 328-1313
A nationwide nonprofit program designed to give patients with cancer the use of
available seats on corporate aircraft to get to and from recognized cancer
treatment centers. Patients must be able to walk and travel without life-support
systems or medical attention. There are no cost or financial need requirements.
Can Help (360) 437-2291
- Planetree Health Resource Center (415) 923-3681
- Schine On-Line Services (800) FIND-CURE
- The Health Resource, Inc. (501) 329-5272
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