Onconurse.com -- Fact Sheet

Lung Cancer Resources

This list includes resources you're likely to use most often and those that are the richest sources of specific information on lung cancer. All entries in each category are listed in alphabetical order, not by importance.

Lung cancer organizations

  • The Alliance for Lung Cancer Advocacy, Support, and Education (ALCASE)
    1601 Lincoln Avenue
    P.O. Box 849
    Vancouver, WA 98666
    (800) 298-2436
    A nonprofit organization dedicated to improving the quality of life of lung cancer patients. Among its many programs are a national information hot line, a list of community support groups, and educational materials including a lung cancer manual (available online or through the mail), resource guide, and quarterly newsletter.

Organizations providing general cancer information

  • American Cancer Society (ACS) National Office
    1599 Clifton Road NE
    Atlanta, GA 30329-4251
    (800) ACS-2345
    The American Cancer Society has many national and local programs to help cancer patients with travel, lodging, and emotional support. They also offer a 24-hour support line for both English- and Spanish-speaking cancer patients.

  • National Cancer Institute (NCI)
    Bethesda, MD 20892
    (800) 4-CANCER
    A division of the US National Institutes of Health, the NCI has an enormous web site, numerous statements, booklets, and books about cancer treatment and care, and a hotline to help cancer patients with a variety of issues such as physician referrals. To learn of the newest treatments available, call (800) 4-CANCER and ask for the PDQ (Physicians Data Query) summary for lung cancer. These free statements explain the disease, state-of-the-art treatments, and ongoing clinical trials. There are two versions available: one for patients that uses simple language and contains no statistics and one for professionals that is technical, thorough, and includes citations to the scientific literature. The PDQ can also be found on the Internet at http://cancernet.nci.nih.gov/pdq.html.

Lung cancer Internet support groups

Internet support groups (listervs or chat rooms) are free email discussions on specific topics of interest. Each subscriber receives a copy of an email sent by any member of the group. Some active groups generate dozens of messages a day. If you subscribe to the "digest" mode, you will receive one email containing all of the messages posted that day. Email discussion groups are an excellent way to connect with people in similar circumstances. Several Internet support groups discuss issues related to lung cancer.

  • ACOR (Association of Cancer Online Resources) hosts dozens of cancer email discussion groups. Groups hosted by ACOR include LUNG-BAC for bronchoalveolar carcinoma, LUNG-SCLC for small-cell lung cancer; and LUNG-NSCLC for nonsmall-cell lung cancer. LUNG-ONC provides general support for all three and for mesothelioma. ACOR hosts dozens of other discussion groups including CANCER, CANCER-FATIGUE, CANCER-PAIN, and CANCER-PARENTS. ACOR offers a convenient automatic subscription feature for discussion mailing lists at www.acor.org. Click on mailing lists (on the left nav bar); then click on the group you are interested in joining.

  • OncoLink, at the University of Pennsylvania, has an online FAQ (document answering frequently asked questions) about cancer listservs at http://oncolink.org/resources/faq/listserv.html. If you would like to learn a bit more about them and get answers to some specific questions, this is a good place to start.

Books about lung cancer

  • Living with Lung Cancer: A Guide for Patients and Their Families, Fourth Edition, by Barbara G. Cox and others. Triad Publishing Co., 1998.

  • Lung Cancer: Principles and Practice edited by Harvey I. Pass. Lippincott Williams & Wilkins Publishers, 2000.

  • Lung Cancer edited by Jack A. Roth and others. Blackwell Science Inc., 1998.

  • Myths & Facts about Lung Cancer: What You Need to Know by John C. Ruckdeschel. P R R, Inc., 1999.

General reading and reference material

  • The Cancer Dictionary, Second Edition, by Robert Altman and Michael Sarg. Checkmark Books, 1999.

  • A Cancer Survivor's Almanac: Charting Your Journey, edited by Barbara Hoffman, JD.
    John Wiley & Sons, 1998.

  • Everyone's Guide to Cancer Therapy, Third Edition, edited by Malin Dollinger, MD.
    Andrews McMeel Publishing, 1998.

  • Informed Decisions: The Complete Book of Cancer Diagnosis, Treatment, and Recovery by Gerald P. Murphy, MD, Lois B. Morris, and Dianne Lange. Viking, 1997.

  • Choices in Healing: Integrating the Best of Conventional and Complementary Approaches to Cancer by Michael Lerner. The MIT Press, 1996.

  • When a Parent Has Cancer: A Guide to Caring for Your Children by Wendy Schlessel Harpham. HarperCollins, 1997.

  • The Chemotherapy and Radiation Therapy Survival Guide by Judith McKay and Nancee Hirano. New Harbinger Publications, 1998.

  • Sexuality and Fertility after Cancer by Leslie R. Schover. John Wiley & Sons, Inc., 1997.

  • When Life Becomes Precious by Elise Needell Babcock. Bantam Books, 1997.

  • Working with Your Doctor by Nancy Keene. O'Reilly & Associates, Inc. 1998

Online Resources

  • CancerGuide
    Steve Dunn, a cancer survivor, clearly explains cancer types and staging, chemotherapy, pathology reports, and the pros and cons of researching your own cancer. He recommends books, includes inspirational patient stories, and has links to many of the best cancer sites on the Internet.

  • CancerNet
    An NCI sponsored comprehensive source of cancer information including types of cancer, treatment options, clinical trials, genetics, coping, support, resources, and cancer literature. CancerNet is one of the most comprehensive information sources for cancer patients on the Internet.

  • CanSearch: Online Guide to Cancer Resources
    Service of the National Coalition for Cancer Survivorship that leads you step-by-step through an online search.

  • Clinical Trials
    A consumer friendly database sponsored by the National Institutes of Health that provides information on more than 4,000 federal and private medical studies involving patients at more than 47,000 locations nationwide.

  • Lung Cancer Online
    This web site, constructed by Karen Parles, a nonsmoking lung cancer survivor, contains original information and pointers to all of the best sites on the Web for lung cancer information.

  • The National Familial Lung Cancer Registry
    The Johns Hopkins Medical Institutions established the registry to help understand the causes of lung cancer (beyond smoking) and to serve as an educational resource for persons at risk for lung cancer.

  • OncoLink
    OncoLink was founded in 1994 by University of Pennsylvania cancer specialists to help cancer patients, families, health care professionals, and the general public get accurate cancer-related information at no charge. It contains general information, symptom management, psychosocial support and personal experiences, overviews of different types of cancer, answers to frequently asked questions, treatment options, and current news.

  • PubMed
    The National Library of Medicine's free search service provides access to the 9 million citations in MEDLINE (with links to participating online journals), and other related databases. Also includes FAQs, news, and clinical alerts.
Free Air Services

  • Air Care Alliance
    (800) 296-1217
    ACA is a nationwide association of humanitarian flying organizations. Founded in 1990, ACA members have safely flown 24,000 patients to and from medical treatments.

  • Corporate Angel Network, Inc. (CAN)
    Westchester County Airport, Building 1
    White Plains, NY 10604
    (800) 328-4226 or (914) 328-1313
    A nationwide nonprofit program designed to give patients with cancer the use of available seats on corporate aircraft to get to and from recognized cancer treatment centers. Patients must be able to walk and travel without life-support systems or medical attention. There are no cost or financial need requirements.
Companies that will do medical information searches for a fee:

  • Can Help (360) 437-2291

  • Planetree Health Resource Center (415) 923-3681

  • Schine On-Line Services (800) FIND-CURE

  • The Health Resource, Inc. (501) 329-5272

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