18

Data Sharing and Data Security

Abstract

Without data sharing, we do not have science. We just have people with their own agendas asking us to believe their conclusions, without evidence. A seemingly infinite list of official position papers, urging researchers to share their research data, has been published, but progress has been slow. To be sure, there are technical obstacles to data sharing, but for every technical obstacle, there is a wealth of literature offering solutions. In this section, we will be looking at all of the impediments to data sharing, and suggesting some practical solutions.

Keywords

Data sharing; Open access; Data hoarding; Data encumbrances; Usage agreements; National Patient Identifier

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